Guest Julia59 Posted January 27, 2005 Report Share Posted January 27, 2005 Hi everyone,I'm back from my neurological appointment. The resident neuro was really nice and smiled a lot and took all my information seriously. The attending Neurologist was focused---but not a smiley face kind of guy. He is doubting that I have significant chiari warrenting surgery. I told him I agree----that i'm not worried about the chiari, but I am worried about the cervical/cranial junction and the instability in the area, and also told him my concern with the retroflex odontoid---aka tilted C1 putting pressure on brain stem.He said he didn't doubt that I had cervical/cranial instability and all the other issue's with my cervical spine--herniated disks included. He is just questioning the Chiari due to the minimal herniation. He did not disagree with the small posterior fossa----(basically chiari 0).I told him i'm very symptomatic and told him I literally feel the instability----he also agreed---and said he would follow my progress with that. The interesting thing he said is that I had two vertebral arteries resting on the brain stem---putting pressure on it. He said that alone could cause me to have many problems including my POTS symptoms. He ordered a MRI---and an MRA to look at the arteries on Feb 8th. Then I will see him on April 4th, and from there I will be scheduled to see another neurosurgeon for a third unbiased opinion.I told him the neurosurgeon won't take me seriously---and then I told him about the first one I saw in Toledo. He said they all different in opinions. He said he would have ordered surgery based on what he saw from those same MRI's. He saw all my past MRI's except from the one's at the Chiari Institute. Those are the one's that showed the blocked CSF flow on the posterior side. He said he would look at those later. I told him I want the upper cervical spine included in the MRI-MRA. HE added that on----because of the cervical/cranial instability.That is all I know for now. I'm in quite a bit of pain due in the cervical/cranial area---and also the lower portion of my cervical spine. the EDS probably plays a big role in the whole mess.The investigation goes on. Julie :0) Quote Link to comment Share on other sites More sharing options...
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