Darlene Posted October 25, 2011 Report Share Posted October 25, 2011 my cousin was just dx with dysautonomia (wonder if it runs in the family now), the dr. believes its secondary to a mild case of mast cell, and is referring him to a mast cell specialist.i have read about mast cell, and have every single symptom it list. i cant afford to drive out of state like he can. do u think this rheumatologist/ immunologist will be able to look for it, or has knowledge of this condition? i had a positive ANA, so i was referred to this specialist. and was gonna bring up mast cell to him. Quote Link to comment Share on other sites More sharing options...
juliegee Posted October 25, 2011 Report Share Posted October 25, 2011 Darlene-Runs in my family too...as it does in many others. I have multiple family members DXed with dysautonomia & "idiopathic anaphylaxis"- another name for MCAD. As I've suggested before, I would come armed with info, such as the Vanderbilt study connecting POTS and MCAD & some basic MCAD info. Why not try to find help locally? Can't hurt. Let us know how it goes.Julie Quote Link to comment Share on other sites More sharing options...
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