Darlene Posted October 12, 2011 Report Posted October 12, 2011 i was diagnosed with dysautonomia in 05, i know a few blood tests were done (can't remember for what) . I know they did do an ELISA and westernblot. ELISA was positive, and westernblot was negative. Unless u test positive to for westernblot i guess u do not have lyme. Although i sure feel like. i want to know what labs should be drawn when being diagnosed with dysautonomia. i think my dysautonomia is auto immune, and am curious the cause of my dysautonomia. Quote
sue1234 Posted October 12, 2011 Report Posted October 12, 2011 When I first came down with POTS, I had already known a little about endocrine issues, so I suspected it was related to my adrenals. So, I went to endocrinologists for the first couple of years. They tested me with all things endocrine:cortisol, am serum(one highish, one close to low, all others normal)cortisol, 24-hour urineACTH, amCortrosyn stimulation test(checks your baseline cortisol and then it stimulates your adrenals to make sure they work right)TSHFSHLHProlactinDHEA-S(mine was 3x normal once, normal the next time)Catecholamines, plasma and urineAldosterone(low once, normal once)Anti-diuretic hormone(low twice)OGTT(reactive hypoglycemia)PTHThen all the other specialties checked me for(can't remember the specific tests, just the diseases):paraneoplastic disordermyasthenia gravislupussomething like the immune proteinsceliacinsulinomaI'm sure there's more, but that's all the biggies that I remember the doctors doing to rule out various diseases. Plus, I've had a bunch of CT scans and MRIs, and other imaging related to intestinal issues. Quote
Katybug Posted October 13, 2011 Report Posted October 13, 2011 I have had similar tests for my POTS as Sue1234. An ELISA can diagnose Lyme depending on the result, even if a western blot is negative. There is a true "positive" result and then there is a result called "equivocal" which usually requires additional "proof". Maybe you can go over the result again with yous doc. A good resource for Lyme info is www.ilads.org . I was also tested for several Lyme co-infections (which are other tick-borne illnesses known to be carried by ticks infected with Lyme, i.e. Babesia, Bartonella.) My Lyme specialist also had my C4a levels tested as this is an inflammatory marker in your immune system known to be higher in people with chronic Lyme disease and a small handful of other autoimmune/inflammatory diseases. I did have Babesia which has to be treated with different meds than Lyme and my C4a was off the charts. Quote
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