DoozlyGirl Posted September 29, 2011 Report Share Posted September 29, 2011 Hello everyone,Wanted to share that while meeting with my endocrinologist to learn the results of my CGMS (continuous glucose monitoring), she offered to refer me to any facility of my choosing. Interestingly, my CGMS results were essentially normal, but since I was already following a pretty controlled balanced 40/30/30 diet, she wasn't surprised on the results. She was extremely concerned of results of the home glucose monitoring I have been able to catch. Within an hour of eating I went from 108 at fasting to 230, then dropped to 74 within 9 minutes. Not too suprising I had a migraine and was vomiting at that time. I also have documented 60 at 90 minutes after eating dinner, when values are expected to be closer to 120. My symptoms are triggered with eating, so to level out the swings, I have to eat often. My elevated random insulin, proinsulin and c-peptide in addition to my autonomic neuropathy opened the door for referral. A really rare pancreatic tumor called insulinoma triggered by food is definitely at the top of the list. We'll see what the specialists at Mayo have to offer, if they even accept me as a patient. Anyone referred to two different specialties at Mayo? I would love to hear of your experiences or any tips. Thanks. I really appreicate all the information this site has given me. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted September 30, 2011 Report Share Posted September 30, 2011 I do hope you'll get some answers. Sounds like you have a lot to work with. I just said this in another post, but it may apply here. Wonder if the the wacky blood sugar swings are due to a malfunctioning autonomic nervous system? I just showed my neuro that old GTT test where the glucose didn't rise and he said it could be because of the dysautonomia. That's kind of vague I know. I should have probed him more on this. Anyway good luck - I hope you get that appointment and soon! Quote Link to comment Share on other sites More sharing options...
sue1234 Posted September 30, 2011 Report Share Posted September 30, 2011 Well, wouldn't you know your blood sugar would "behave" during your testing! Isn't that how it always goes!!! I'm glad your going to Mayo and get a further work-up. Quote Link to comment Share on other sites More sharing options...
lieze Posted September 30, 2011 Report Share Posted September 30, 2011 Are you watching the glycemic index of the foods you are eating?I was also having issues with reactive hypoglycemia and eating sticking with the low glycemic index foods really helps to avoid that crash after eating. Quote Link to comment Share on other sites More sharing options...
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