issie Posted September 20, 2011 Report Share Posted September 20, 2011 I just went to my GP for problems relating to a fungus-y toenail which has become infected. Lamisilthanks!You can soak your toes in clorox water and also apply tea tree oil. It cured my issues with this. Also, taking a really good probiotic and olive leaf and possibly aloe vera juice - may take care of it systemically. Quote Link to comment Share on other sites More sharing options...
issie Posted September 20, 2011 Report Share Posted September 20, 2011 BUT...I had POTS as a child Firewatcher,I've also had it as a child. Not sure what my bp was back then - they never checked children's bps. I was however checked for hypoglycemia and had it severely. So, they attributed allot of my issues to that. But, I also have EDS and wasn't diagnoised until my 40's - so I know that was part of the issue. Looking back - you do wonder what all the autonomic issues have caused us as adults. I know my bp swings all over the place - but is mostly staying high now. And when I get the drops - it's horrible.Doctors ask me when I think I got POTS and I think it was connected to an unexplained illness when I was about 8 years old. It also could have been connected to a polio vaccine that me and my sis and friend got - we all got sick then and we all have autonomic isssues - from then on. Issie Quote Link to comment Share on other sites More sharing options...
targs66 Posted September 20, 2011 Report Share Posted September 20, 2011 Thanks for the tips, Issie. I've tried the tea tree oil w/out success but haven't tried clorox. Will give it a go. I'll be watching this discussion with interest - am curious as to whether systemic fungal problems can cause/add to our problems. Quote Link to comment Share on other sites More sharing options...
issie Posted September 20, 2011 Report Share Posted September 20, 2011 Thanks for the tips, Issie. I've tried the tea tree oil w/out success but haven't tried clorox. Will give it a go. I'll be watching this discussion with interest - am curious as to whether systemic fungal problems can cause/add to our problems.Make sure you dilute the clorox or it will burn you and your nails. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted January 8, 2012 Report Share Posted January 8, 2012 fascinating thread thanks. Quote Link to comment Share on other sites More sharing options...
E246 Posted January 8, 2012 Report Share Posted January 8, 2012 Goodness this is very interesting but i find it hard to keep up. It takes a while to absorb all the details as i was only diagnosed last year. I have been so ill recently am desperate for some answers. I have been diagnosed for a few years with high creatine levels. Have just started fludrocortone and this has really helped- the first thing that has. As i have hyper pots i assumed this medication would not work as it would increase my bp too much but this has not happened. Also i find my chest pain always feels better after a glass of red wine. It does not make my symptoms worse but will increase my hr if i try and do to much. But it relaxes me. It has sulphides in it - is this related?I am a bit muddled can anyone help? Should i be pursuing the issue of raised creatine?Thanks Quote Link to comment Share on other sites More sharing options...
sue1234 Posted January 8, 2012 Report Share Posted January 8, 2012 This article is pretty interesting, well, it is almost impossible to understand, but I do understand the important part. In essence, it says that H2S in higher quantities slows down intestinal motility. http://www.ncbi.nlm.nih.gov/pubmed/22111064 Quote Link to comment Share on other sites More sharing options...
issie Posted January 9, 2012 Report Share Posted January 9, 2012 Emma, is there any dysfunction with your liver? Reason I ask there is a problem with the kidneys that can be connected with liver dysfunction. If it's really high though - I'd question it no matter what. I feel that POTS has some connection with kidney dysfunction - but so far, can't get a doc to pursue this with me.Issie Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted January 9, 2012 Report Share Posted January 9, 2012 A CFS team in Australia think that CFS patients nearly always exhibit increased hydrogen sulfide. it could potentially explain a number of the strange mechanisms of POTS. And I believe there are medications that can effect its bioavailability. Quote Link to comment Share on other sites More sharing options...
issie Posted January 9, 2012 Report Share Posted January 9, 2012 Yes, but there are opposing studies. There are some that say it is helpful because it keeps NSADS from damaging stomach, etc. and it helps with resperation. Then there are the opposite studies showing that it has damaging effects connected with glutathione production - which has to do with the gut ecology and function. So, who do you believe? Supposedly, it HELPS in hopoxia situations. I don't know . . . .think there needs to be more research. Quote Link to comment Share on other sites More sharing options...
firewatcher Posted January 9, 2012 Author Report Share Posted January 9, 2012 "Should I be pursuing the elevated Creatinine?"Emma-Most definitely! I have stage 3 Chronic Kidney Disease based on a high SCr and other kidney function tests. My nephrologist thinks that the changing blood pressure has caused damage to my kidneys. There are also kidney issues that are treatable that can cause blood pressure issues! PM me with any questions. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted January 12, 2012 Report Share Posted January 12, 2012 Apparently vitamin B12 acts as a scavenger of both nitric oxide and hydrogen sulfide. Quote Link to comment Share on other sites More sharing options...
issie Posted January 12, 2012 Report Share Posted January 12, 2012 Apparently vitamin B12 acts as a scavenger of both nitric oxide and hydrogen sulfide.And OMG it was horrible for me. So what does that say about the type of POTS I have? Quote Link to comment Share on other sites More sharing options...
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