mwise Posted September 17, 2011 Report Share Posted September 17, 2011 I guess I need to do some venting with this disease. I had 3 really good weeks of feeling like I was turning a corner with this disease. I was doing extra little things around the house along with short walks at work for the 1st time since I was diagnosed in Dec. 2010. I thought maybe just maybe I was beating it. Well wham-the weakness, low bp, buzzing in head & ears & yes dropping to the floor constantly on top of having intestinal flu started this week. Grrrrrr. Each day for the past 5 days, the symptoms have gotten worse. Couch & bed bound now. I know my neurologist said I will have some bad days each month, and I have but more symptomatic this time. I keep praying for healing and shed allot of tears with this. I know life has its' ups and downs, but it seem like I have more downs than ups especially with having this disease. I am sending out hugs to all of you that suffer with Dysautonomia and allot of other diseases with it and hope to get some back. I love all you and am thankful that you are hear to listen Quote Link to comment Share on other sites More sharing options...
misstraci Posted September 18, 2011 Report Share Posted September 18, 2011 I'm happy for your good 3 weeks and sorry you've become not well again. I hate this disease as well and hope this is just a small bump and you go back to feeling good!! I always feel a big emotional crash after having a good period even if it's a day or two and then when I go back to feeling crappy, I am so bummed and depressed, etc. Fingers crossed, you feel better again really soon! Quote Link to comment Share on other sites More sharing options...
songcanary Posted September 18, 2011 Report Share Posted September 18, 2011 Sending big (((hugs))) your way! I hope that this bad time is short lived and you are back on your feet soon. It is a cruel disease to say the least and is like riding a big roller coaster. And I HATE roller coasters! But at least it finally comes to a stop and I hope yours does, too. Quote Link to comment Share on other sites More sharing options...
mwise Posted September 18, 2011 Author Report Share Posted September 18, 2011 Thank you Mistraci & Songcanary for listening and the hugs. I really do feel like I am on an emotional roller coaster let alone the physical roller coaster with this disease. I am just so glad to have you all hear who know this disease. Quote Link to comment Share on other sites More sharing options...
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