houswoea Posted September 10, 2011 Report Share Posted September 10, 2011 I hate this topic. I never talk about it with doctors because it's embarrassing... but it's getting out of hand. I'm taking mestinon which really helped for a bit, but not much anymore. I'm taking magnesium supplements, which helped for a while, but not anymore. And I'm taking over the counter stuff, but that doesn't help, and I'm wondering if anyone's had any luck with anything. Quote Link to comment Share on other sites More sharing options...
redoctober Posted September 10, 2011 Report Share Posted September 10, 2011 I've had success with a product called Digestive Advantage (Irritable Bowel)...seems to be helpful for me. I've also discovered that adrenaline worsens my IBS-C (always has)...so things that calm my nervous system are a tremendous help to the "rest and digest" part of the equation. Quote Link to comment Share on other sites More sharing options...
juliegee Posted September 10, 2011 Report Share Posted September 10, 2011 I take 3 doses of Miralax daily with 500mg of magnesium. You could also consider a GI prokinetic, like liquid erythromycin/Ery-Ped. Quote Link to comment Share on other sites More sharing options...
shoegal Posted September 10, 2011 Report Share Posted September 10, 2011 3 times a day miralax? wow does it help? Quote Link to comment Share on other sites More sharing options...
juliegee Posted September 10, 2011 Report Share Posted September 10, 2011 3 times a day miralax? wow does it help?Yeah, I know I was repeatedly hospitalized with obstructions following gallbladder surgery a few years ago. My GI system didn't just slow down- it stopped. I literally ate one bowl of rice for two weeks- that's how little I could consume & nothing came out the other end. My GI actually recommended DAILY colonoscopy preps He finally released me from the hospital and told me that I could use up to EIGHT doses of miralax a day. Thank God, 2.5-3 doses does the trick. I take it faithfully every night all in one dose. I usually take 1/4 phenergan with it as I feel slightly nauseated after. This regimen has me NORMALish When my GI tract shut down, my BP also tanked, and I was basically bedridden. Florinef, Ery-Ped (a GI prokinetic) along with the mega doses of Miralax got me back on my feet. I am so grateful to be as well as I am now. I put a few drops of real lemon juice in my nightly Miralax cocktail and enjoy. The trick is to NEVER skip a dose. It often takes a few days before anything happens. Quote Link to comment Share on other sites More sharing options...
redoctober Posted September 11, 2011 Report Share Posted September 11, 2011 When my GI tract shut down, my BP also tanked, and I was basically bedridden. I get basically the same thing...slow GI stuff definitely worsens my BP issues. Clinically...I don't get it, though -- how can slow motility result in low BP? Quote Link to comment Share on other sites More sharing options...
brethor9 Posted September 11, 2011 Report Share Posted September 11, 2011 I also have very bad issues with slow motility and chronic C so my specialist prescribed Mestinon...apparently it helps muscle weakness throughout the body? which I find strange since one of the major side effects is GI problems....mmmmm....sometimes I wonder why we are prescribed drugs that the side effetcs are the exact same as the symptoms we suffer from???bren Quote Link to comment Share on other sites More sharing options...
sugartwin Posted September 11, 2011 Report Share Posted September 11, 2011 I also have very bad issues with slow motility and chronic C so my specialist prescribed Mestinon...apparently it helps muscle weakness throughout the body? which I find strange since one of the major side effects is GI problems....mmmmm....sometimes I wonder why we are prescribed drugs that the side effetcs are the exact same as the symptoms we suffer from???brenMestinon would give most people the craps and bad nausea due to the rapid emptying of the stomach. When I first took it, and could feel 'signs of life' in my GI tract for the first time in months, I thoughts to myself, "A normal person would be glued to the toilet right now." Quote Link to comment Share on other sites More sharing options...
houswoea Posted September 11, 2011 Author Report Share Posted September 11, 2011 Yes, I was pumped about the mestinon speeding things up, but now it's not enough. I don't know if miralax works for my body, I've tried it often and it doesn't seem to work. I'm thinking I might have some thyroid imbalance problems, which is pretty normal for women. It's getting to be like weeks now before anything happens at a time, and it just isn't supposed to be that way Quote Link to comment Share on other sites More sharing options...
juliegee Posted September 12, 2011 Report Share Posted September 12, 2011 When my GI tract shut down, my BP also tanked, and I was basically bedridden. I get basically the same thing...slow GI stuff definitely worsens my BP issues. Clinically...I don't get it, though -- how can slow motility result in low BP?I don't know. It's like a chicken or the egg thing. My son & I always experience the GI symptoms first, but his docs at Hopkins insist that the autonomic dysfunction causes the nerve damage in the small bowel. Regardless, once the GI symptoms cause us to lose a significant amount of weight- the autonomic symptoms (like very low BP, fast HR) take over... Quote Link to comment Share on other sites More sharing options...
Dizzysillyak Posted September 13, 2011 Report Share Posted September 13, 2011 Add me to this list .. I was using a combo of candidase + gastro for a few months and it helped get things moving out of my stomach but never helped with constipation.I.m currently slowly increasing a variety of magnesium forms to see which ones help or if the combo works best. I'm taking Natural calm, 235mg, citrate form, twice a day. Source naturals Magnesium malate 3 times a day. Each capsule only has about 70 mgs of magnesium. And .. Lol ... Solgar calcium + magnesium ... Which have 125 mg per tablet. Total of about 1000 mg per day. So far my stools havd been looser and my digestion is quicker and I haven.t had d .. My guess is that I.m low on magnesium ... D Quote Link to comment Share on other sites More sharing options...
jbenz1772 Posted September 13, 2011 Report Share Posted September 13, 2011 I too can be added to the list. I had minor constipation every month until about 2 days before period when I would completely clean out naturally probably from the hormones. In the last couple of months the constipation has been causing significant pains about an extra 5lb weight gain because I haven't gone to the bathroom. I talked to my neuro yesterday, and I am going to try Miralax until my appointment with her next Thursday. Then I believe we are going to discuss Mestinon. So I guess we'll see.JenPOTS, Small Fiber Autonomic Neuropathy, aura migrainesmidodrine, propranolol, lexapro, torodol Quote Link to comment Share on other sites More sharing options...
bruc Posted September 13, 2011 Report Share Posted September 13, 2011 I too can be added to the list. I had minor constipation every month until about 2 days before period when I would completely clean out naturally probably from the hormones. In the last couple of months the constipation has been causing significant pains about an extra 5lb weight gain because I haven't gone to the bathroom. I talked to my neuro yesterday, and I am going to try Miralax until my appointment with her next Thursday. Then I believe we are going to discuss Mestinon. So I guess we'll see.JenPOTS, Small Fiber Autonomic Neuropathy, aura migrainesmidodrine, propranolol, lexapro, torodolIf Miralax doesnt work try Nulytely same active ingredient as Miralax but with electrolytes will require prescription.Re Nulytely: Commonly used for bowel prep but thats not how Im using it. I dont mix up the entire gallon. I just use the powder in the bottle. 17grams per day in two divided doses.There is 420grams in the bottle. Pour out the amount of powder you need for the day.Magonate better magnesium supplement for GI slowness.Bruc Quote Link to comment Share on other sites More sharing options...
houswoea Posted September 14, 2011 Author Report Share Posted September 14, 2011 It worked! I just upped the miralax and magnesium and things are going again. Woopwoop! Thanks guys! Quote Link to comment Share on other sites More sharing options...
juliegee Posted September 14, 2011 Report Share Posted September 14, 2011 Woo Hoo!!! Quote Link to comment Share on other sites More sharing options...
juliegee Posted September 14, 2011 Report Share Posted September 14, 2011 Woo Hoo!!! Quote Link to comment Share on other sites More sharing options...
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