sue1234 Posted August 26, 2011 Report Share Posted August 26, 2011 I was thinking today about the people from last winter and spring that were going to begin their exercise program based on the Dallas doctor's protocol. I would think this many months into it you all would be having some results, whether good or not-so-good. So, I want to hear results. Anyone? I hope most chime in that participated, otherwise we might just hear one side or the other of the results. Quote Link to comment Share on other sites More sharing options...
Iluveb22 Posted August 26, 2011 Report Share Posted August 26, 2011 Hi,I'm new to the forum, but I participated in the exercise program (thru the study but in my own state). I did great on the program- it was extremely difficult, but I improved immensely and, on my last measurements for the study, no longer fit the criteria for POTS. However, I finished over a year ago and have not kept up the exercise and I am back to having POTS symptoms. I still feel better than before the study, but I don't know if the effects will last, seeing how I have begun to regress. If I had continued the intense exercise, I might be in a better place right now. That just isn't practical for me anymore as I have a full-time job though. My main cardiologist is not very understanding about it being too difficult to repeat at this time in my life. He told me that I did very well on the exercise program and I should do it again and besides that he didn't know what else to tell me. I'm seeking a second opinion.Hope this info is helpful for those considering the program! Quote Link to comment Share on other sites More sharing options...
maggie Posted August 28, 2011 Report Share Posted August 28, 2011 I was on the protocol study and it made my pots worse from the day I started. I lasted three months and my doctor told me to stop that it was only making my life worse. It may work for some, but not for me.Maggie Quote Link to comment Share on other sites More sharing options...
ACB Posted August 28, 2011 Report Share Posted August 28, 2011 How timely! I was just logging on to update my original post about the protocol. I'll do that now! Quote Link to comment Share on other sites More sharing options...
sue1234 Posted August 28, 2011 Author Report Share Posted August 28, 2011 Thanks to all that give their stories. You all have been the guinea pigs, and the rest of us would like to know how it turned out. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted August 31, 2011 Author Report Share Posted August 31, 2011 I sure thought there were alot more people doing the Levine protocol. Quote Link to comment Share on other sites More sharing options...
Crow Posted August 31, 2011 Report Share Posted August 31, 2011 I tried but it made me sicker / exacerbated my EDS issues. I'm going to try again, though, when the weather cools if they'll let me (if not I'll just do it anyway but they won't have my data). Quote Link to comment Share on other sites More sharing options...
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