derekliz Posted August 13, 2011 Report Share Posted August 13, 2011 http://www.athni.com/index.php?services_ansHas anyone been to or heard of this neurologist in Macon Georgia? Going to possibly call them Monday morning to get more information Quote Link to comment Share on other sites More sharing options...
redoctober Posted August 13, 2011 Report Share Posted August 13, 2011 Have you considered The Autonomic Disorders and MVP Center in Birmingham? I consulted with Dr. Watkins a couple of months back...he had a nice signed letter from Dr. Blair Grubb on his credenza. Overall, I was very pleased with the visit...although the do focus more on the cardio aspect of things. Quote Link to comment Share on other sites More sharing options...
toddm1960 Posted August 13, 2011 Report Share Posted August 13, 2011 The neuro I saw in Rochester, NY ran the ANSAR testing at the same time as my TTT. It's one good reason to find a neurologist to administer your TTT and not a cardiologist, not many cardios will run the ANSAR. Quote Link to comment Share on other sites More sharing options...
derekliz Posted August 13, 2011 Author Report Share Posted August 13, 2011 Yes, I am thinking about the center in Birmingham. What kinds of tests did they do for you?I just looked up the ANSAR testing. This is all new to me so I printed out some info and will talk to my neurologist to see if she has any idea as to where I can have this done. I have not spoken to her since the "Possible" diagnosis. Hopefully she has some knowledge of POTS or can direct me to someone who does.I am just trying to complile a list of tests that I can give to my cardiologist. As of right now, he seems willing to help but I will know for sure when I see him again on Friday! Quote Link to comment Share on other sites More sharing options...
redoctober Posted August 14, 2011 Report Share Posted August 14, 2011 Here's a link that explains my experience w/Dr. Watkins: http://forums.dinet.org/index.php?/topic/17399-my-visit-with-dr-watkins.I also had the pleasure of consulting with Dr. Robert Hamill in VT while on vacation (listed on the DINET physician list)...who is a neurologist (wonderful experience...which I'll post on shortly). Short of going to Vandy or Mayo, I really think you need to get a consult with a Cardio & Neuro to cover all the bases. Quote Link to comment Share on other sites More sharing options...
derekliz Posted August 14, 2011 Author Report Share Posted August 14, 2011 Approximately how long was it to get an appointment in Birmingham? I am alittle over an hour away from there so it is definately an option for me. I wish i could get some decent rest. I wake up every nite at 4am feeling that my heart is racing but when i take my pulse it is about 72 which is my normal rate for lying down....could this be anxiety? My BP is normal...not high and not low...is that a good sign? Quote Link to comment Share on other sites More sharing options...
redoctober Posted August 14, 2011 Report Share Posted August 14, 2011 I wish i could get some decent rest. I wake up every nite at 4am feeling that my heart is racing but when i take my pulse it is about 72 which is my normal rate for lying down....could this be anxiety? My BP is normal...not high and not low...is that a good sign?Exactly how I felt...I would wake around 3-4am feeling like my heart was racing more than normal and very anxious. As soon as I'd stand up...it would shoot up to 120-130 and I'd feel really dizzy/shaky/nauseous. BP has always been pretty normal (used to be slightly hypertensive). Regarding the appointment, he was able to get me in within 2 weeks...which was great. Quote Link to comment Share on other sites More sharing options...
derekliz Posted August 14, 2011 Author Report Share Posted August 14, 2011 Wow...2 weeks...that is great! Did you schedule your own appt or did your md do it? I am actually 3 hours away but still close enough! I am calling tomorrow!!!! Right now i am not on any rx meds for tbis. My cardio prescribed florinef but i would.like to have all the testing done before taking any meds.How long was your appt and do you have to make follow up visits with them? I just looked and saw that they participate with my insurance.....happy about that!Has any vitamins/naturL treatments helped you? I hate meds because i always have side effects which now i am reading is very common with pots. Quote Link to comment Share on other sites More sharing options...
redoctober Posted August 14, 2011 Report Share Posted August 14, 2011 I just called them myself...Dr. Watkins only takes 1 new patient per week, and he had a slot open 2 weeks later. Didn't need to involve my MD at all. The appointment lasted about 3 hours...Dr. Watkins spent about an hour with me himself. Plenty of fluids seem to help me the most...trying to stay hydrated. I tend to mix powdered Gatorade w/Alka-Seltzer Gold (has K)...and drink a ton of this every day. Can't say that any specific supplement has been helpful, but I'm always open to suggestions. Quote Link to comment Share on other sites More sharing options...
derekliz Posted August 14, 2011 Author Report Share Posted August 14, 2011 I just left them a message to call me to schedule an appointment....hopefully it wont take too long to get seen. Is Dr. Watkins the "One" to see at the clinic?Do you ever get tingling in your legs? I primarily have it on and off in my right leg...knee down to ankle. Sometimes my left leg too. Wondering if I should make an appointment to see my neurologist locally or just wait for my appt. in Birmingham.Are there any other conditions that can cause elevated pulse when standing other than POTS? I have a nodule on my thyroid that is 6mm and they are doing a follow up ultrasound in 2 weeks to see if it has grown. I know that hyperthyroidism can cause tachycardia but would the tachycardia be present all the time or just upon standing??I also have a ferritin level of 27 (in range but on the low end). Low ferritin can cause tachycardia upon exertion from what I have read........so much to learn.....wish the MD's knew more! Quote Link to comment Share on other sites More sharing options...
derekliz Posted August 15, 2011 Author Report Share Posted August 15, 2011 I have an appointment next Thursday with Dr. Phillips! Quote Link to comment Share on other sites More sharing options...
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