brethor9 Posted August 9, 2011 Report Share Posted August 9, 2011 Hi All!So for a little over a month now I have been trying to stabalize my florinef dose. When the dr prescribed it the daily dose was for 1mg. I have not been able to make it to that dose as I am struggling with side effects such as lots of water retention, increase in head pressure, incredibly sore breasts (I know its the florinef as I had a hysterectomy several years ago and went down about 2 bra sizes due to hormone changes)and severe gastro pain. On the up side the florinef really has helped with the head pressure/ dizziness that I was dealing with 24/7 at a 1/4 tablet daily. Here is where I am getting confused and need help??? It seems like after a couple of days I start to get the bad water retention, sore breasts, etc at night I start having bad hot flashes and severe headache/ head pressure..so I stop the florinef for a few days all those symptoms settle down...urinate like crazy, my system crashes...then I start the florinef again and everything is ok again for a couple days. All of this is happening even on a 1/4 tablet...I am staying hydrated with fluids and salt...but wonder if this is a build up issue with the florinef (or my kidneys aren't excreting properly?) and maybe this isnt going to work for me? Besides midodrine and florinef are there other meds similar to florinef??? My specialist is away until the end of August and I have no family GP so right now I am stuck for guidance. Any insight??? I would appreciate it.... this stuff really gets me down Bren Quote Link to comment Share on other sites More sharing options...
Lenna Posted August 9, 2011 Report Share Posted August 9, 2011 My son's doctor put him on an every-other-day schedule. Perhaps that would work better for you. Quote Link to comment Share on other sites More sharing options...
brethor9 Posted August 9, 2011 Author Report Share Posted August 9, 2011 My son's doctor put him on an every-other-day schedule. Perhaps that would work better for you.Thanks Lenna!What is your son's dose every other day??Bren Quote Link to comment Share on other sites More sharing options...
Lenna Posted August 9, 2011 Report Share Posted August 9, 2011 He's taking .05 every other day. Quote Link to comment Share on other sites More sharing options...
Yolaclover Posted August 9, 2011 Report Share Posted August 9, 2011 I am having same issues, trying every other day too, starting now Quote Link to comment Share on other sites More sharing options...
brethor9 Posted August 9, 2011 Author Report Share Posted August 9, 2011 I am having same issues, trying every other day too, starting nowHi 718 Mom!Can you relate what your symptoms have been? Do you know if its normal? I am so frustrated because I cant even get ahold of my specialist to ask.....today has been brutal!! severe head pressure, hot flashes, increased heart rate....I really dont know what to do anymore I feel bad on it and I feel bad off it all for different reasons..... its weird because it almost feels like the florinef is making my hormones go crazy!!Bren Quote Link to comment Share on other sites More sharing options...
Yolaclover Posted August 10, 2011 Report Share Posted August 10, 2011 First day off was bad for me!! My head hurts and felt very lightheaded will have to keep taking every day, today was a difficult POTs day for me, how was your day? Quote Link to comment Share on other sites More sharing options...
Yolaclover Posted August 10, 2011 Report Share Posted August 10, 2011 Btw, my head pressure had been gone for about a week,, finally after 4 months on florinef with head pressure. Today was just head pain and lightheaded, ESP when I turn my head Quote Link to comment Share on other sites More sharing options...
brethor9 Posted August 10, 2011 Author Report Share Posted August 10, 2011 same here...it seems taking the day off doesn't work either....I am wondering if there is something else going on??? I also find my allergies have been much more severe since starting on it....also there seems to be some rebound pressure??? especially late afternoon....I cant tell if I am still taking too much or maybe not enough?? the head pressure is better for a bit but then comes back with vengeance especially at night......last night my head was pounding so bad I could have cut it off....so I really dont know what the heck to do???Bren Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.