lieze Posted July 16, 2011 Report Share Posted July 16, 2011 Do any of you get blips in memory of POTS like similar incidents or symptoms pre full blown POTS? My life has been a whirlwind with having 4 kids in 7 years so I was either pregnant, with an infant recovering from pregnancy and nursing for 10 years straight along with the sleep deprivation that comes with it so I was just going nonstop and in and out of exhaustion for years-working too. I thought my body could just go forever.Well I remember my last pregnancy I think it was in the mornings I was up at 5 for work and would get ready and then have to load my 1 year old? Daughter into the car into her carseat. I remember how hard it was to get them buckled in at times especially over a bulging belly how I'd strain with all my might to do that... Then I'd get in the driver's seat and I was having mini episodes!!! I was getting palps, slight shortness of breath and lightheadedness from that morning routine. I went on from there and was okay....I told my husband hoping for help and his solution was that I get up 15 minutes earlier so I had time to have my episode before I started driving....his response just irritated me.I wanted help loading her. But I just remembered that just now....5 years later...2 years after my POTS started.Do you have flashbacks and what are they like? Quote Link to comment Share on other sites More sharing options...
lgtaylor100 Posted July 16, 2011 Report Share Posted July 16, 2011 I was just thinking about this yesterday. My worst symptom is exhaustion. I was thinking back pre POTS and remembered the same type of exhaustion for several years pre POTS. The major difference was that the exhaustion pre POTS relented with a good night's sleep and now it does not. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted July 16, 2011 Report Share Posted July 16, 2011 My POTS started 5 years ago, but I can think back to when I was 8 1/2 months pregnant with my last child(19 years ago). I had a day where I went into the store with my other two small kids, and I had a wave of lightheadedness. I was out of my town, so I went to a friends home to just sit for a while. When I felt better, I made the 30 minute drive home. I called the obstetrician to tell him my issue, and he had me go to the hospital labor/delivery. They drew blood, he got the results and told me I was anemic and to double up on my iron supplements.So, then I went 15 years with never another lightheaded episode--until 5 years ago with POTS. It was the same exact feeling, and that's why I wonder IF it could be a form of anemia that is not showing up due to the low blood volume or similar something.Leize, I would assume you have definitely been thoroughly checked for anemia with having all the babies back-to-back? That sure could be draining on your body. Quote Link to comment Share on other sites More sharing options...
lieze Posted July 16, 2011 Author Report Share Posted July 16, 2011 I did get severely anemic that last pregnancy but my problem was taking the prenatals seemed to slow down my digestion so badly that I wouldn't go to the bathroom for days...and I felt all backed up and uncomfortable like I couldn't eat-so I ditched the prenatals and ate and got somewhat of a normal digestive system back but then my iron level plummeted.My concern now is the heavy periods I have and they come very often like every 3 weeks. At times when I stand up I just pour out and it's scary to see all that especially knowing my anemia history.My last HGB was good! Yes still anemic but I was just under normal range.I'd like to find an iron tablet that's safe for me corn free sulfite free and take one maybe once or twice a week just to give myself a boost.I eat red meat daily.I found a way also to slow things down at my monthly for anyone else with that problem for some reason getting in a bathtub with warm water slows things down. I don't understand the physics of it and maybe it only makes me psychologically feel better I don't know but it seems to work. Just learned that trick about a month ago. Quote Link to comment Share on other sites More sharing options...
Olive Posted July 16, 2011 Report Share Posted July 16, 2011 I have had chronic fatigue for years. Now my ferritin is 8, but my hematocrit is normal so they won't transfuse iron. I feel like crap with the fatigue. In January my ferritin was low and my doctor infused iron then, I felt much better. He is out with illness and I'm having trouble finding someone to infuse. I should also mention I don't absorb iron by mouth. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted July 16, 2011 Report Share Posted July 16, 2011 Yea, I had lowish ferritin also, at 17. Of course that is in the "normal" range of something like 15-200, but who wants to be at rock bottom "normal"? That was when I was having heavy periods. Quote Link to comment Share on other sites More sharing options...
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