Guest Ph03ziX Posted January 7, 2005 Report Share Posted January 7, 2005 Hi, after my very warm welcome here, I'd like to startasking some serious questions. This one I had tonightreally bad, and it was very scary, it lasted about 30 minsbut it never truely goes off, just the acuteness.I wanted to ask any of you if you have this as a backgroundsymptom, or as an 'attack'. If I were to describe it I would say:-----------------------------------------------------------------*Sense of 'missing something' (I get this sometimes on its own).It's a bit like feeling suddenly very faint as if you need chocolatefast, or something you 'NEED' desperatley.I'd describe it as an intensefeeling, like if you drove home and realised you'd left your child at a store, BUT it feels inside you, not just emotional. Doesn't last long normally.*Not this time, but often sitting on the PC out of knowhere I feelthe need or just do it involuntarily.....I breathe in 20,30 mini breathsin (pursed lips), then a huge one out and a large 'gap'. Then it will return to normal. What is awful is I know this is totally bizarre but I cant stop it.Yes, very very odd. I hate it. Sometimes it might do it a few times, then disappear, and I'm like ***?. All I can say is it's not me doing it, sometimes I even catch myself breathing IN in time with the music....... rather problematic when you listen to high energy dance music!!!!Jokes aside, it's not joke as you cant KEEP breathing in as your chestexpands to a maximum. For some odd reason, my body makes me do this.I guess it does it in 'bursts' as I'm so weak with M.E/CFIDS it cant take a normaldeep breath. Who knows.*You feel you can't 'naturally' breathe, there is no impoteceto breathe in or out, if anything you breathe SLOWER than normaland you have to 'think' about breathing in, otherwise youfeel you wouldn't at all. Compared to 'normal' when you endyou breathe out there is normally a feeling we have thattells us to breathe in, or an awareness. This stops.Breathing is a lot weaker too...*You feel very sleepy/weak and although it's terryfyingyou certainly haven't got an adrenaline rush to leap outthe door to go to Hospital or even phone anyone, as you wouldn'tbe able to 'think' to use the phone. I often have it so when someoneasks me a question there's a long pause, as if I can't speak as I dontknow how.*Normally severe headache, this often comes on before the breathinggoes disjointed. I' describe this headache as one I never had in health.It feels like something is stuck inside. A bit like when you frown, butdeep inside. Faintness/Numb Head/Numb Teeth/Like being in a dream.I always have this, but when very bad it's like not being here, like seeinga ghost in the mirror if you looked in it, not you. Another way to describeit would be you're body is asleep, but you're awake.*Almost always triggered by eating or using your brain, e.g PC use.Or just random.*There is a sense of cognitive 'loss' of NOT knowing how to breatheall combined with the above, so it's doubly scary, almost like yourbrain has forgotten how to do it automatically, and you're having to do it.I normally try and combat this by 'singing' to myself, or talking if I can.*Loss of sensation you are breathing, so you have to make noisesto show yourself you are breathing in, e.g like mini 'coughs' in your throat.E.g you cant feel or dont KNOW which is 'in' and which is 'out. *Often it ends quite abrubtly, and I go much more sleepy and weak/exhaustedand it's a lot like being on Valium really, relaxed, but this is the reverseof how you are during the episode. (I get that all the time after a POTS chest pain/breathing stiffness event too) Weird. I used to get this after shaking episodes on the PC as well, but that's another thread. ------------------------------------------------------------------------I know this is probably my messed up brain with M.E/CFIDS, or you guys willthink. ***? ...but if anyone else gets this or knows what on earth it is, please say.I have no idea if it's related to POTS, but I have it most of the time,my girlfriend is used to me being 'weird' when it comes to breathing and making'noises' as I cant feel it or aware that I am. I wake up with it from my sleep toowith it, and can't sleep because of it. I normally go to sleep at 5-7 a.m 'cos of symptoms.A long shot, I wondered if the severe 'attacks' are some sort of electrical activityin the brain, almost like a seizure? I've seen women have 'Autonomic Seizures' when they eat, but they look like a full on fit and they pass out, These turns I have would look from the outsider as I'm confused about what is what, literally. Not anxious, just 'off my head' and breathing in a weird way and weak/faint. It's my life, I've got used to it, but it gets progressively worse through the day, and these **** 'attacks' keep coming on.I've been wanting to ask these questions and lots of others for a long long time, but I never had the guts as I didn't want people to think I was weird, or just have an 'anxiety' attack'. I've had lots of them, and it's nothing like any of these feelings.Anyway, that's just some of what M.E/CFIDS or 'POTS' does to me.........(If this is POTS!).Many thanks.Ben. Quote Link to comment Share on other sites More sharing options...
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