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Vandy Study?


sandymbme
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I sent off an application to be evaluated at Vanderbilt, and I am wondering how long it takes to hear back from them? My overall condition has deteriorated at an alarming rate over the last 6-8 months, and I am becoming increasingly anxious about what is going on with me. I was going to follow up today and just make sure they received my paperwork, but I was hoping someone could shed some light on how long it takes to get in, and an idea of what to expect. Doing the rounds of specialists lately seems to be the equivalent of chasing my tail! Plus my recent Celiac diagnosis makes managing my POTS even more complicated, and would LOVE some guidance on trying to manage the two together!

Sandy

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I sent off an application to be evaluated at Vanderbilt, and I am wondering how long it takes to hear back from them? My overall condition has deteriorated at an alarming rate over the last 6-8 months, and I am becoming increasingly anxious about what is going on with me. I was going to follow up today and just make sure they received my paperwork, but I was hoping someone could shed some light on how long it takes to get in, and an idea of what to expect. Doing the rounds of specialists lately seems to be the equivalent of chasing my tail! Plus my recent Celiac diagnosis makes managing my POTS even more complicated, and would LOVE some guidance on trying to manage the two together!

Sandy

Are you applying for their 2 week study? If so I heard back from them very quickly. If I remember correctly it was just a few days. It took 2-3 months from that point for them to get me in, that was 18 months ago. They have you come in for 2 days to see if you meet the criteria to get into the study. If you meet the criteria then you stay the rest of the two weeks. I can give you more detail about my experience but would rather do it in a PM. Let me know.

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I was initially told it would take me a year to get in with Dr. Grubb, and ended up seeing him just a couple of months after my initial phone call. It helps that, health permitting, my schedule is wide open, I can accommodate any last minute openings that might come up at Vanderbilt. (Which is exactly how I got in with Dr. Grubb so quickly!) Thank all of you for taking the time to answer! Do you feel it was a worthwhile journey? Do you feel you gained further understanding, or a clearer diagnosis? Were you able to incorporate new strategies for healing, and for gaining stability?

I know FAR better than to expect a magic bullet or a quick fix. My health has just deteriorated so very far the last 6-9 months or so. I am increasingly desperate to find anything that could just slow down the slide. I want to keep my expectations realistic. But I also don't want to go to the trouble, and REALLY can't afford the expense of going to Nashville unless I can hope to gain a little ground...

Sandy

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