ana_22 Posted February 23, 2011 Report Share Posted February 23, 2011 i'm not sure if the person in the video is a member of dinet. anyone else doing the dr. levine protocol? Quote Link to comment Share on other sites More sharing options...
Godsgal Posted February 23, 2011 Report Share Posted February 23, 2011 She goes on and on about how this saved her and then doesn't tell what exactly to do! Does anybody on here know???? I'm intrigued by this video and I'm ready to get started!!! Quote Link to comment Share on other sites More sharing options...
handmadebyemy Posted February 23, 2011 Report Share Posted February 23, 2011 Yes, I am doing Dr Levine's protocol. The reason (I'm guessing) that she doesn't get into what exactly involved in the exercises is that it is still being researched and all the participants sign a form agreeing not to publish the exercise protocol. But you can find out more information in a thread called "Dr Levine Exercise Program" (just search it at the top of the page - I couldn't get the link to work. I am in week 8 of the program (its 12 weeks) and I'm feeling so much better - better than I have in years. I would recommend to everyone to just give it a try. It is tough, especially at first, but if it doesn't work for you, you can always stop and go back to your current form of treatment. One thing to note is that you have to stop all medications that affect your heart rate. (You can stay on other medications though, I am on thyroid medication & migraine medication that are fine to take). I hope this helps! Quote Link to comment Share on other sites More sharing options...
Noreen Posted February 23, 2011 Report Share Posted February 23, 2011 I am so glad it is working for you, Emmy!It seems, though, that I haven't read of anyone with EDS having success with the protocol. Do you know if I am wrong? Quote Link to comment Share on other sites More sharing options...
Godsgal Posted February 23, 2011 Report Share Posted February 23, 2011 okay...I want to do this! But getting off my meds means high heart rate, 140's to 150's, and crazy bp fluctuations. I don't know how exercise is even feasible for me right now especially considering I can't walk around the mall. Quote Link to comment Share on other sites More sharing options...
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