TheLivingDead Posted July 13, 2010 Report Share Posted July 13, 2010 i was just wondering if anyone else exp. this?about 2 weeks ago i started getting alot more tremors and then muscles spasms all over. this past week the tremors stayed but now when i try to pick something up or hold an arm or leg in the air it really shakes until i put it down or support it. any ideas? Quote Link to comment Share on other sites More sharing options...
nmorgen Posted July 13, 2010 Report Share Posted July 13, 2010 Hi,I just wanted to let you know that I get the same thing. Sometimes I can go periods without this happening and then wham it's back. I started getting them again about 1 1/2 months ago. I have tried doing strength training this week and I feel like jelly, but my shaking continued for at least 30 min after I stopped. It makes me feel horrible. I'm taking magnesium, but it hasn't been helping too much this time. I wish there was a cure b/c this is the worst POTs system I have, well at least it feels the worst to me. Good luck, and if you find anything that helps please let me know. Quote Link to comment Share on other sites More sharing options...
toddm1960 Posted July 13, 2010 Report Share Posted July 13, 2010 It could be time to look into Mitochondrial cause for your POTS. Good luck with everything and I hope you start feeling better soon. Quote Link to comment Share on other sites More sharing options...
nmorgen Posted July 16, 2010 Report Share Posted July 16, 2010 Hi Todd,What type of dr should I go to for mitochondrial causes of POTs? What type of disorders should be looked for? Quote Link to comment Share on other sites More sharing options...
toddm1960 Posted July 16, 2010 Report Share Posted July 16, 2010 I started with my neuro, once he agreed we should look into this further (he was the same doctor that had never heard of POTS but agreed to find me someone to do a tilt table) he then refered me to a geneticist. The geneticist did her own testing then agreed a muscle biopsy would be the best way to confirm a mitochondrial diagnosis. Check out mitoaction.org this months webinar is on muscle biopsies and new diagnostic testing. Just let me add many mitochondrial specialists think dysautonomia is a symptom of mitochondrial dysfuction, it still all very new research. Good luck finding some answers and I hope you feel better soon. Quote Link to comment Share on other sites More sharing options...
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