Notgivinup Posted June 27, 2010 Report Share Posted June 27, 2010 appt go? Are you back yet? Let us know. Been thinking about you. Quote Link to comment Share on other sites More sharing options...
Notgivinup Posted July 1, 2010 Author Report Share Posted July 1, 2010 Bumping. Quote Link to comment Share on other sites More sharing options...
Rachel Posted July 1, 2010 Report Share Posted July 1, 2010 If Kayjay isn't up for checking on the forum right now then she might not see this topic. You might want to send her a PM, and that way she'll get an email notification about it.I hope your trip went well Kayjay!Rachel Quote Link to comment Share on other sites More sharing options...
kayjay Posted July 2, 2010 Report Share Posted July 2, 2010 how sweet are you? I have been thinking of you and wondering about the surgery thing. Mayo was helpful but I came home a mess! I asked about something to help with the horrible fatigue and was told that hyper POTS people should not take adderal etc. I hope you are doing better. I am a horrible "friend" but I do think about and pray for so many of you. Just don't get on the phone or computer to show it.From mayo I learned that my doc. recommends nadolol, klonopin, and cymbalta if you have pain. he would not give me something like lexapro unless I was depressed. I think my level of depression is normal?!We stayed at the double tree - about 160 a night... but super nice. We (I)tried to pretend it was a vacation... but then they gave me a tilt table test! Quote Link to comment Share on other sites More sharing options...
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