EarthMother Posted December 16, 2003 Report Share Posted December 16, 2003 I had my tilt table test today. Got up to 155 without drugs, BP stayed fairly normal. Doctor confirmed this is POTS. Ok, now the work officially begins!My cardio is reluctant to try beta blockers because they could increase my fatigue (I have CFIDS) and I am likely hypovolemic. We are discussing florinef, but for now I am going to take salt tablets and see if I can't bring up my blood volume.Since I have thyroid autoimmune disease I am particularly interested in the report (on this site) about an autoimmune component to POTS for some people. In specific it talks about an"antibody to neuronal nicotinic acetylcholine receptors of autonomic ganglia (Vernino, Low, Fealey, Stewart, Farrugia & Lennon, 2000)." and instructs us to have our docs contact:Dr. VerninoDepartment of Neurology, Mayo Clinic200 First Street., S.W.,Rochester, MN firstname.lastname@example.org My question is ... has anyone had this test at this lab or know of any other labs who perform this? My hospital staff have tried to reach Dr. Vernino but thus far have been unsuccessful. Any tips?Thanks! and thank you so much for this board it was an amazing help today as I talked with my doctor.EarthMother Quote Link to comment Share on other sites More sharing options...
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