persephone Posted April 9, 2010 Report Share Posted April 9, 2010 Anyone else get this? The pain I wrote about the other day is now replaced by random episodes of itchy tingling across my scalp and arms and legs at different times. Weird or what? It's not listed as a side effect in the BNF- british national formulary of drugs. So I'm not sure if it is the drug? It certainly seems to coincide with me starting Mestinon though... Would be really interested to hear whether y'all have experienced similar. Quote Link to comment Share on other sites More sharing options...
Simmy Posted April 9, 2010 Report Share Posted April 9, 2010 I'm on Mestinon now too, but the side effects I've experienced from it have been mostly nausea and stomach cramps. Oddly though, I had the same tingling and itching especially on the back of my scalp, along with hairs standing up all over my body even in places I never knew I had hair, but that started shortly after I started Midodrine a few months earlier. Quote Link to comment Share on other sites More sharing options...
heathmcev Posted April 10, 2010 Report Share Posted April 10, 2010 I had scalp tingling before going on mestinon and my ans specialist didn't know why it was happening but said he wouldn't be surprised if pots was causing it. As for mestinon side effects - I had twitching thumbs for almost 2 weeks (a bit disconcerting) and major gi upset on the timespan version. I take lower doses of the non-timespan version now throughout the day to avoid upset. I hope your side effects subside. I find there are almost always SEs that aren't in the write-ups! Especially for those of us who are so uber-sensitive to meds. Best of luck with it. -dizzyde Quote Link to comment Share on other sites More sharing options...
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