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HopeSprings

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I hope it's ok to post this question here. :) Before I found Dinet (which is amazing) I was visiting another support group called NDRF. I have tried many times over the last few months to access those boards and it consistently says under maintenance. I just find this very odd as this was a pretty active message board. The founder is Linda Smith, the lady with POTS, profiled on Mystery Diagnosis. Hope she's ok. I am just curious if anyone knows anything?

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My understanding is that there were some problems with the board so they took it offline. I don't have any information on Linda or her husband's status, but my guess is they're taking a breather before relaunching the forum there... if anyone knows differently, please post. Like many of you, it was the first forum I found b/c it was started before ours.

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NDRF isn't moderated. Before it went down there were some really ugly offensive posts.

It got really creepy with people saying things like SATAN was at work on the board.

I have heard that the Smith's have wanted to shut down the board in the past because they don't have the time to moderate it, and I am afraid this might make them decide not to bring it back.

It is sad since it is a first stopping point for many, and also how many of us got to this site.

I would like to thank those who started this board, and maintain it and moderate it since that really is a tough job.

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