heathmcev Posted November 29, 2009 Report Share Posted November 29, 2009 Hi everyone,I just want to see if this sounds like anything anyone else has experienced. I started taking a BB (Pindolol) in August and am now on 5mg 2x/day. My POTS neuro doesn't want to increase that dose because I'm so sensitive to meds, so he added Mestinon in October to increase my BP and lower HR more. But here we are after a month & a half of that combo and I'm still getting loads of palps everyday. I even tried going completely off Cymbalta (NOT fun with the withdrawal!!) since they suspected that could be exacerbating the palps, but I've been off it for almost 3 weeks now and no change at all... still getting lots of palps daily. Cymbalta clears the body in 4-5 days, so that's definitely not the problem.I'm going to get an appt with my EP to get his opinion -- but would like to know what you all think. He had said that the palpitations weren't actually anything bad... just the ANS acting on the heart and making it misbehave. My POTS neuro, however, says they're an indicator of increasing HR. Hmmm... thoughts?Thanks!! Quote Link to comment Share on other sites More sharing options...
Guest brianala Posted November 29, 2009 Report Share Posted November 29, 2009 I still had palpitations when I was on Toprol. My doctors took me off that and put me on Midodrine. I still get them occasionally, but if I do it's usually a sign that I'm not getting enough water. When I'm well hydrated I don't seem to get them as much. Make sure you're getting tons of water and salt every day! Quote Link to comment Share on other sites More sharing options...
tinkerbella Posted November 29, 2009 Report Share Posted November 29, 2009 I do get them mostly when I lay down I notice them or start a new heart med.Is there any caffine in anyhing in your diet?That the 1st place the docs look and it's hidden in many foods and drinks.bellamia~ Quote Link to comment Share on other sites More sharing options...
heathmcev Posted November 30, 2009 Author Report Share Posted November 30, 2009 I try to drink a lot of water - and do have my salt tabs everyday. But I feel like I just pee it all out, which makes it hard to keep drinking... I have to go all the time! Sorry to be so blunt, but that's what happens! If it is making the palps worst to drink less then I obviously need to be better about it regardless.I haven't had caffeine in 5 years... drs had me stop it for anxiety. i know a little sneaks in with the occasional decaf or chocolate - but I notice that I still have lots of palps even when I don't have either. Still a good point -- I'll talk to my EP about diet to see if there could be anything else. This really helps Quote Link to comment Share on other sites More sharing options...
tinkerbella Posted November 30, 2009 Report Share Posted November 30, 2009 I try to drink a lot of water - and do have my salt tabs everyday. But I feel like I just pee it all out, which makes it hard to keep drinking... I have to go all the time! Sorry to be so blunt, but that's what happens! If it is making the palps worst to drink less then I obviously need to be better about it regardless.I haven't had caffeine in 5 years... drs had me stop it for anxiety. i know a little sneaks in with the occasional decaf or chocolate - but I notice that I still have lots of palps even when I don't have either. Still a good point -- I'll talk to my EP about diet to see if there could be anything else. This really helps Hidden Caffeine Concerns:I never knew caffine was in all of these products! http://www.pregnancytoday.com/articles/pre...tant-moms-3872/ http://digg.com/health/Caffeine_Hidden_In_...vorite_Productshttp://www.howtodothings.com/health-fitnes...ces-of-caffeine <a href="http://www.streetdirectory.com/food_editor...g_your_ibs.html" target="_blank">http://www.streetdirectory.com/food_editor...g_your_ibs.html</a>wow~ i got some explaining to do sunflower seeds??? may explain my prolonged tachy recently...bellamia~ Quote Link to comment Share on other sites More sharing options...
tinkerbella Posted November 30, 2009 Report Share Posted November 30, 2009 stay away from these: http://www.strangenewproducts.com/2007/03/...ower-seeds.htmlbellamia~ Quote Link to comment Share on other sites More sharing options...
erikainorlando Posted November 30, 2009 Report Share Posted November 30, 2009 On toprol XL...loads of palps still...I always think it is the ANS acting up.Erika Quote Link to comment Share on other sites More sharing options...
StacyRN Posted November 30, 2009 Report Share Posted November 30, 2009 I agree, it feels like the POTS just doing its thing... does anyone know if palpitations are more commo with the hyperadrenergic form of POTS?? Quote Link to comment Share on other sites More sharing options...
extern14 Posted November 30, 2009 Report Share Posted November 30, 2009 I still have my palps all the time but mostly when I first lay down at night. I take Zebeta as a BB but I don't know how the meds react differently. I just assumed that having palps was normal for those with POTS. Quote Link to comment Share on other sites More sharing options...
tinkerbella Posted November 30, 2009 Report Share Posted November 30, 2009 I HAVE HOLTER MONITORS ALL THE TIME and I find it funny that they are happening all day long but I notice them ostly when I lay down. WHEN I TRIED TO TAKE ATENENOL broken up into slivers 4 times a day it really played havoc with my heart. LIKE A FISH OUT OF WATER, FLIP FLOPPING AROUND!Bellamia~ Quote Link to comment Share on other sites More sharing options...
jump Posted November 30, 2009 Report Share Posted November 30, 2009 Have you tried magnesium supplements? I find they help with palpitations more than my BB did, although the BB helped some. Quote Link to comment Share on other sites More sharing options...
heathmcev Posted December 1, 2009 Author Report Share Posted December 1, 2009 I seem to have (or at least notice) palps most when lying down too! Esp after dinner through when I fall asleep. Glad to know I'm not alone. Has anyone had a Dr tell them POTS-related palps are having a negative effect? It's certainly easier to ignore them or blow off their significance if there's nothing bad about having them in the first place. Then they just become a nuisance...Thanks for all of those links BellaMia! I can't believe how many things have hidden caffeine! Lip gloss? How weird is that. I love the idea of the caffeine testing system that WashU is coming up with (http://www.howtodothings.com/health-fitness/how-to-identify-hidden-sources-of-caffeine)! Could be really helpful to some. I used to be able to have so much caffeine with no effect. So sad.Jump: on the magnesium supps... what type of mag are you talking about? There are different kinds, and from my experience, they can be hard on fragile digestive systems. Any wisdom there to share? I'd certainly be up for trying it if I didn't think I'd end up sick from it. Thx Quote Link to comment Share on other sites More sharing options...
EarthMother Posted December 3, 2009 Report Share Posted December 3, 2009 I use to take Natural Calm magnesium. It helped some with the palps, but my cardio switched me to Slow-Mag ... its a timed release magnesium supplement, very easy to digest and absorb. Within a couple months my palps had gone down dramatically. Now they are the rare occurrence instead of the norm. Quote Link to comment Share on other sites More sharing options...
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