jjb Posted November 7, 2009 Report Share Posted November 7, 2009 Hi all. I brought Ava to see a mito specialist last week who said it sounds as though we both could have mito disease.We also have EDS.I had mentioned to her that a cocktail of supps similar to the mito cocktail is also used for EDS and we started talking about a possible relationship between the two conditions.In the past I know I have read EDS effects the mitochondria, but now I cannot find any info.Does anyone have any info connecting the two? Does anyone here have both mito disease and EDS?Thanks Quote Link to comment Share on other sites More sharing options...
toddm1960 Posted November 8, 2009 Report Share Posted November 8, 2009 I don't have any info connecting the two, I can tell you I'm waiting test results from Dr Shoffner on my mito testing. Who did you go to for testing? Did you have fresh or frozen tissue testing? I hope you get some answers that help your feel better Quote Link to comment Share on other sites More sharing options...
Aprilmarie52 Posted November 8, 2009 Report Share Posted November 8, 2009 We saw Dr. Shoffner for our mito diagnosis for my daughter. I have POTS, but no one in our family has been diagnosed with EDS. Good luck. Quote Link to comment Share on other sites More sharing options...
juliegee Posted November 8, 2009 Report Share Posted November 8, 2009 Jen,Go to google scholar and type both conditions in the search engine. A multitude of hits will come up. Peruse and see if anything fits Ava. I searched already & there's a lot of stuff to wade through. Let us know what you find out. I hope you're on the road to getting her some much needed help.Hugs-Julie Quote Link to comment Share on other sites More sharing options...
jjb Posted November 9, 2009 Author Report Share Posted November 9, 2009 I don't have any info connecting the two, I can tell you I'm waiting test results from Dr Shoffner on my mito testing. Who did you go to for testing? Did you have fresh or frozen tissue testing? I hope you get some answers that help your feel betterWe saw Dr Sims. So far just had blood work done. Quote Link to comment Share on other sites More sharing options...
jjb Posted November 9, 2009 Author Report Share Posted November 9, 2009 Julie, yes a lot come up but none are really about the two conditions or whether or not mito is effected in EDS.And of couse those are only the articles I was able to wade through as many of those articles on GS requires payment.:/Jen,Go to google scholar and type both conditions in the search engine. A multitude of hits will come up. Peruse and see if anything fits Ava. I searched already & there's a lot of stuff to wade through. Let us know what you find out. I hope you're on the road to getting her some much needed help.Hugs-Julie Quote Link to comment Share on other sites More sharing options...
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