Amber Posted October 22, 2009 Report Share Posted October 22, 2009 I was just diagnosed with low frequency hearing loss and was wondering if that is common in people with Dysautonomias..... From what the audiologist said most people lose their high frequency hearing so its abit unusual for it to be low frequencies that give me trouble. I have a tough time hearing men speaking especially in loud environments. It doesn't seem so much a volume problem but rather that the words jumble together......very frustrating and embarassing to always ask them to repeat themselves.The doc did mention that this type of sensorineural hearing loss is seen in people with Fibromyalgia (which I have as well) so thats probably the origin of it for me but when I asked if autonomic problems are related he said absolutely yes.So I guess I'm just wondering how many of us have low frequency hearing loss.... Quote Link to comment Share on other sites More sharing options...
Kitsakatsa Posted October 23, 2009 Report Share Posted October 23, 2009 Yes, this year I was diagnosed with Endolymphatic Hydrops. Apparently its permanent and its from dysautonomia. It sounds like everything is in a tin can and the bass in the normal, natural world is horribly loud. There are sometimes that I cannot hear and everything sounds muffly. Yes, fabulous. I had never heard of it until I had it. One of the hidden joys of POTS, I guess. Anyway I wanted to let you know that you are not alone. I wish I knew more about it. I am worried about vertigo in the future. I think it must be a really small subsection of people that get this. We must be the lottery winners...!Kitsa Quote Link to comment Share on other sites More sharing options...
potsgirl Posted October 23, 2009 Report Share Posted October 23, 2009 I get some weird type of pretty severe vertigo once a year or so. I can't turn my head to either side without my head spinning and feeling nauseous. Laying down and sitting up causes these symptoms, too. For about a week, I need to just lay still and let it play itself out. My ENT thinks it's a viral infection - but this was before my dysautonomia diagnosis. Very much a pain in the neck! Seems to happen when seasons change...At first they thought it was Meniere's, but I really don't think they're sure of anything. Also get nystagmus with it - where your pupils go back and forth in a horizontal position very rapidly. Anyone else?Cheers,Jana Quote Link to comment Share on other sites More sharing options...
EarthMother Posted October 23, 2009 Report Share Posted October 23, 2009 Timely to see this post .... as I had another VIOLENT episode of vertigo yesterday. I was getting them off and on last spring/early summer, but it had been months since I had an attack. In this case I was still laying peacefully in bed and then WHAM ... the room started spinning hard counter clockwise. It must have lasted an hour plus, followed by a day of compete exhaustion and my head feeling like it was stuffed with cotton and the tinnitus that I usually have was at least twice as loud.Kitsa what kind of Dr. diagnosed your Endolyphatic Hydrops and what tests did you do?For every season ... turn ... turn ... turn. Quote Link to comment Share on other sites More sharing options...
Kitsakatsa Posted October 27, 2009 Report Share Posted October 27, 2009 Just an ENT and it was from a basic hearing test. They could see eustachian canal dysfunction and some of my symptoms were when I jumped up from sitting that the hearing would totally go. Apparently, that is typical of this problem and correllates with dysautonomia. This doctor works closely with an Internal Med and Neurology office and so sees a good amount of stuff like this. There is no treatment. I was lucky that I didn't have to go through more testing and specialists though. Kits Quote Link to comment Share on other sites More sharing options...
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