gertie Posted August 22, 2009 Report Share Posted August 22, 2009 How many of you experience vasovagal syncope when having severe colon cramps during a BM? What med's do you take? I know I've probably discussed this before but everytime I have an episode I get so depressed you would think I had never experienced it before. It is so traumatic to me to think that I may end up passed out in such an obnoxious situation. It may last 30 min before any relief & then I can hardly walk back to the bed. Now that I'm older it takes hours to recover. What would I do if this happened while away from home? I would end up in the floor in a public restroom with you know what all over me. At home I keep a table so I can fall over on it but away from home no such prop.I keep Levsin S/L in my bathroom. I don't know when it is going to happen so I can't take anything to stop it or if there was it would probably be to sedating. Sorry this is so long. Thanks Quote Link to comment Share on other sites More sharing options...
daisy Posted August 22, 2009 Report Share Posted August 22, 2009 I feel for you I don't actually pass out but whenever I have to have a bowel movement or feel that urge, I get very lightheaded, nauseous, pulse racing, etc. My Dr. says this is because of the vagal nerve. Sometimes, it's worse than others. It's really bad if I haven't gone for awhile....then I will be very sick until I do.Lately, I have been very nauseous whenever I eat and waking up in the middle of the night feeling like I'm going to vomit also having the vagal symptoms. But, I have been in a bad flare so I guess it's just par for the course.It is traumatic to think this might happen in a public setting. I often get the vagal symptoms if I'm out eating and the food starts to move through. It's very frustrating. I guess the best thing to do is to wear a bracelet saying you have vasovagal syncope so if the worst happens, people will know what's going on. And maybe use the handicapped bathrooms that have a handle to grab onto.I wish I had a better answer but I do empathize with what you're going through. Quote Link to comment Share on other sites More sharing options...
kschoon777@yahoo.com Posted August 22, 2009 Report Share Posted August 22, 2009 This is one of my major problems also. I avoid public restrooms and if I think I may have GI problems when I do go out I take an Immodium. I also have a chair in front of the toilet at home in case I need to pass out. I've been on the bathroom floor many times. One thing that helps me is my injection of octreotide. It will keep me from passing out when I use the bathroom. At night is another story, since I can't take my medications (midodrine, fludrocortisone and octreotide) at night. I have a bedside commode and sometimes I barely make it back to the bed before passing out. I've also been on my bedroom floor many times. I'm not good with bedpans. By the way, I have Pure Autonomic Failure. I hope you find something that works for you. Quote Link to comment Share on other sites More sharing options...
gertie Posted August 22, 2009 Author Report Share Posted August 22, 2009 Thanks for your replies. It seems everything that might help me is something I can't take. I feel like I'm always whinning about something probably because there is so much that happens to us with dysautonomia. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.