yogini Posted September 28, 2004 Report Share Posted September 28, 2004 I just came back from the Mayo Clinic, where they recommended that I try taking Mestinon. I was really psyched to get a new recommendation at first. But after searching on the web, it seems that some people have had some pretty bad experiences with it. My POTS symptoms seemed tolerable on .2 mg florinef (+atenolol) and I totally relapsed when my local Dr. told me that I should taper it off 2 months ago. I am deciding between re-increasing my florinef or trying out the Mestinon. Part of me thinks that I should just stick with the known evil flornef rather than constantly trying to better my condition (an endless roller coaster ride which seems to go nowwhere) The other part of me wants to be as close to normal as possible. Would love to hear from people who've tried Mestinon or anyone else who has any advice! Thanks!! Quote Link to comment Share on other sites More sharing options...
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