dsdmom Posted October 30, 2008 Report Share Posted October 30, 2008 So I have been taking Mestinon for probably about 6 months and other than having some adjusting to do in the beginning I've really liked it. I'm on a low dose - have built up slowly to 20mg 3/day. Just recently I'm having more autonomic problems - and it seems to be worse when I take the Mestinon. I'm really confused because until this point the Mestinon has always made me feel better. Is is possible that something has changed and it's making me feel worse? Has anybody else had a similar experience with this drug? Quote Link to comment Share on other sites More sharing options...
Angelika_23 Posted October 30, 2008 Report Share Posted October 30, 2008 Can't help you there, it made me worse from the start of taking it. Hope you get it worked out.Angela Quote Link to comment Share on other sites More sharing options...
Rachel Posted October 30, 2008 Report Share Posted October 30, 2008 I felt worse while taking Mestinon. Within 3 days my symptoms were worse. Have you recently increased your dose? It could be that the slightly higher dose is too much. I hope you can find out what is going on.Rachel Quote Link to comment Share on other sites More sharing options...
SunsetParadise49 Posted October 30, 2008 Report Share Posted October 30, 2008 It stopped working for me eventually. Quote Link to comment Share on other sites More sharing options...
dsdmom Posted October 31, 2008 Author Report Share Posted October 31, 2008 Gwendolyn,How long were you on it before it stopped working? And what dose were you taking? Howdid you know it stopped working - did it just not help with your symptoms anymore or did it actually make you symptoms worse? Quote Link to comment Share on other sites More sharing options...
Ernie Posted October 31, 2008 Report Share Posted October 31, 2008 Hi,I had severe diarrhea and had to stop it after 2 days. Quote Link to comment Share on other sites More sharing options...
mrsdavidson8605 Posted October 31, 2008 Report Share Posted October 31, 2008 Hi,Mestinon was probably the WORST drug I tried, other than beta blockers that lowered my BP. I was so revved up I couldn't sleep!!!! Quote Link to comment Share on other sites More sharing options...
masumeh Posted November 3, 2008 Report Share Posted November 3, 2008 first 3 pills I tried caused a flare-up of POTS symptoms because it made me pee like mad Quote Link to comment Share on other sites More sharing options...
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