Jordan5815 Posted July 29, 2008 Report Share Posted July 29, 2008 I started a 6 week bootcamp at the ymca it took me 13minutes and 15 seconds to run a mile but afterwards my heart was not just pumping fast and hard like normal people's do Mine felt like the atria did not constrict and the ventricle decided to go for it and the breathe instantly got knocked out of me. it happens on and off for about 1 minute. anyone know what is up with that? anyone else have that? All I know is the bootcamp and I'm in the beginners class is kicking my booty lol. they did the assesmentpushups each timed for 1 minute maybe this will encourage other people to excercise as well. but yeah my heart did go up in the 200's by the end of everything.pushups: 32situps: 461 mile: 13:15But yes any answers about that heart deal doctors on the ekg's say it's perfectly normal and they have caught it when it was happening on ekg which is weird. Well, I think there should be a cool excercise thread for everyone makes a group effort to do the slightest bit they can do. I am fortunate that my body is still in "ok" shape just my pots symptoms flare with the working out just does not put me into one of those huuuuuge episodes the valium definately helped with that don't know why but apparently it acts as a central nervous system depressent which won't make my sympathetic take off so fast. Well get back to me guys !!!! Quote Link to comment Share on other sites More sharing options...
Jordan5815 Posted July 29, 2008 Author Report Share Posted July 29, 2008 I was reading about what happens when the wind gets knocked out of you..... I found out it paralyzes your diaphram which = wind knocked out of you.....I'm thinking it could happen because I'm very skinny and my heart beats really hard. Since I'm skinny when my heart beats really hard it could paralyze my diaphram which would knock the breathe out of me is that possible? because I'm talking I'm really skinny i gained a little weight tho now I'm 125lbs and 5ft 11in. I'm setting a goal for 133 lb's hopefully soon it will happen. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted July 29, 2008 Report Share Posted July 29, 2008 Congratulations on exercising and your goals. Exercise is important, especially for POTS. I would ask your cardiologist about any concerns about heart rhythm?it sounds like you have and they have reassured you all is ok?but it is always ok to ask again. Each of us experiences different variations of POTS symptoms and severity, as well as different combinations of other conditions, and we are of different ages. A heart rate of 200+ bpm might be safe for you, but not so safe for others. Here?s a calculator for determining your target heartrate based on gender and age:http://www.changingshape.com/resources/cal...ecalculator.aspIf you are going above that, you may want to check with your doctor and ensure that is ok. Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted July 29, 2008 Report Share Posted July 29, 2008 Perhaps you should be doing more tailored exercise as opposed to a boot camp that is geared toward "average" folks without chronic health issues. I use a personal trainer who has SLOWLY worked me up to doing more challenging exercise. Just my 2 cents.Nina Quote Link to comment Share on other sites More sharing options...
mkoven Posted July 29, 2008 Report Share Posted July 29, 2008 200bpm sounds awfully fast. I would feel pretty sick, I think. Does the person running the program know about your pots? Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted July 29, 2008 Report Share Posted July 29, 2008 My physician had to individualize my "high" limit for exercise based on my already high rate. The exercise heartrate high for my age and condition and size is closer to 150 and I easily get up to 190 during exertion so I am trying to not go over 160.Also, I get SVT's AFTER stopping exercise and cooldown. This is not good so I am very careful not to push too hard.tearose Quote Link to comment Share on other sites More sharing options...
Jordan5815 Posted July 30, 2008 Author Report Share Posted July 30, 2008 Day 2 more extreme I'm talking alot more extreme. It was all in sets of so and so but i did a total of 75 squats, with 10 pound weights in hand. 75 lunges with 10 pound weights, side ways lunges, 100 pushups, 50 reps, you get the idea it was alot........ even jumping squats on top of it woah those were hard lol.Still trying to figure out what that heart thing could be tho..... it's sometimes starts in my stirnum but always ends with the wind knocked out of me........But I feel great now after the workout and the heart rate calmed down. I'm glad I did it. They know I have pots but do not know what it is, I'm not trying to separate myself from the rest of the people in any way most of the people there are way overweight so are having problems as well. So... I kind of feel equalized I had the best time in the mile tho so I did push myself. Tommorrow is supposed to be more intense Weekend I will be able to rest but at the end of the 6 weeks I should be in alot better shape then I currently am in.........even more interesting muscles do not even hurt because I am really strong just my heart rate shoots up so I need to watch it. Quote Link to comment Share on other sites More sharing options...
ajw4790 Posted July 30, 2008 Report Share Posted July 30, 2008 Hi,Did you work up to this type of exercise or did you go from little/ no exercise to this? This seems like a very extreme form of exercise for most of us here, especially right out of the gate. It would be more of something to work up very slowly to.Congratulations on finding a source to help you exercise etc. I would just make sure that you are not overdoing it.It is important to listen to your body, and perhaps how you feel with the exercise is your body's way of saying that this is too much right now, and to work slowly up to this point.It is important to remember that exercise is beneficial when you do it appropriately, but when done to much to fast/ to the extreme that you could do more harm than good. Not necessarily permanent harm, but could dehydrate, have excessive adrenaline, or set ones self up for injury. The excessive adrenaline/dehydration could set you up for a crash. Injury could occur if you have low blood volume or blood being shunted to the areas that you are working or the brain and not to others that still need it and cause injury to muscles etc. do to restricted blood flow. If exercise is approached in a more gradual manner then over time your body is able to accomodate and bulid up to being able to do these tasks.I hope that makes some kind of sense... I would reread what I typed and realized I was using the wrong words etc. in my fog... So who knows! Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted July 30, 2008 Report Share Posted July 30, 2008 John, even though the overweight folks may be struggling, they are not struggling because their heart is doing things it's not supposed to do. Sorry, but I think what you're doing is a really, really bad idea. Nearly every autonomic specialist I've ever spoken to suggests SLOW and STEADY growth in strength and aerobic training, not a total immersion like you're doing. Please don't take offense at me saying this so plainly, but I think it's pretty dangerous. Nina Quote Link to comment Share on other sites More sharing options...
Jordan5815 Posted July 30, 2008 Author Report Share Posted July 30, 2008 I'll lighten up on it a little bit and let them know... But I still want to push myself for the longterm. If it puts anyone at ease they do have defibrillators, I've been counting my heart beats manually after each workout and it does go into the 200's but im getting a heart rate watch over the weekend. btw I'm 18 my heart should be able to go in the 200's wind getting knocked out of me usually occurs after my workouts when my heart is slowing down.I also used to be a biiiig athlete trained everyday was even sponsored in tennis. toured in australia before a rotator cuff injury. Quote Link to comment Share on other sites More sharing options...
mkoven Posted July 30, 2008 Report Share Posted July 30, 2008 I'm not expert in this, but isn't the formula for max hr 220-age? This would make your max hr 202. But very few athletic trainers would recommend trying to hit your max, especially regularly, and especially if you have pots. This is not my area of expertise, but just because your hr can go this high, doesn't mean it's a good idea to take it there. I agree, a monitor would be good, with an alarm that lets you know when you've pushed too hard. Quote Link to comment Share on other sites More sharing options...
ajw4790 Posted July 30, 2008 Report Share Posted July 30, 2008 Hi,Has your drs. cleared you for this kind of exercise? And are they aware of your body's response? It maybe helpful for you to work one on one with an exercise physiologist, physical therapist, or experienced certified trainer that can give you more of a personalized workout/recommendations.It is not a one size fits all scenario.I understand wanting to do the most you can and to push yourself etc., but what you are describing does not sound healthy or beneficial. Having a defibrillator does not make it any better, because you don't want to take it to that level and you can do harm without needing to use a defibrillator.Remind me to what your diagnoses and current treatment consists of? Because if on certain meds and reaching this HR, can be even more dangerous.What are your symptoms currently when not exercising?What drs are you working with? Do you have a cardio? Quote Link to comment Share on other sites More sharing options...
Jordan5815 Posted July 31, 2008 Author Report Share Posted July 31, 2008 day 3 heart i caught my hr at 175 not as bad as the other days considering it was supposedly a harder workout......waiting for insurance to see dr. grubb since he is the one everyone is talking about..... I'm going to call them up every week and see about cancellations because i will make sure i'll get there as soon as possible instead of waiting the 10 months. current meds 12.5mg metoprolol at night time.....valium: 12.5mg half tablet 3 times daily and 1 at bed. so total 12.5mg im doing less then prescribed and it seems to work so i don't have the sudden Big episodes..... Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted July 31, 2008 Report Share Posted July 31, 2008 Most of us are Not overweight or deconditioned and must not do anything to the extreme!Sounds from your daily blog type reporting you may have just be deconditoned. You may just be "lucky" enough to be the type to "get all better" from exercise! You may just not have a dysautonomia at all! Quote Link to comment Share on other sites More sharing options...
Jordan5815 Posted July 31, 2008 Author Report Share Posted July 31, 2008 Most of us are Not overweight or deconditioned and must not do anything to the extreme!Sounds from your daily blog type reporting you may have just be deconditoned. You may just be "lucky" enough to be the type to "get all better" from exercise! You may just not have a dysautonomia at all!I'm not overweight im severely underweight..... lost 40lb's- 60lb's in 2 month period back when i was 14 for no apparent reason still don't know why that happened but i never gained it back. towards the dysautonomia that would be nice if i was just seriously deconditioned but i doubt it strongly because 1 1/2 yr's I was boxing and my hr was resting at 35bpm before all this crap happened. it came on gradually no overnight..... first they thought it was pheochromocytoma then got diagnosis for pots later. Quote Link to comment Share on other sites More sharing options...
ljoeb Posted August 1, 2008 Report Share Posted August 1, 2008 My problem has been that my heart rate does not increase to my "target range" unless I am doing something ultra radical. The highest it will usual get is in the 130's. I did a "metabolic stress test" with my EP doc that diagnosed orthostatic intoloerance (he put me through a battery of autonomic tests) and my heart rate barely got to 135 by the end of the test. I asked the tech if that was normal (she kept asking me through the test if I could keep going and I said I was fine) and she said that a man my age, 47 at the time and 300 lbs, would not normally complete the test and if they did, their heart rate would be much greater. She was looking for the heart rate to be in the 180 or more range. I asked her when it was over, "I thought you said this was supposed to be hard?"My problem is I don't sweat much at all when I excercise (or any other time for that matter), so after about 20 minutes or so on a treadmill walking at the highest level of incline at 3.3 miles per hour, I am not winded, but my body starts to "heat up" on the inside and I know I better stop before I overheat. That is not a fun feeling.Just a quick question: My normal body temp is in the high 96 to low 97 range. When I am outside (Texas heat) for just a few minutes, I can take my temp and it will be over 100 degrees and it takes a while to drop back to normal. Is this rise in body temp normal? I wouldn't think it is, but just wondering what you have experienced. Quote Link to comment Share on other sites More sharing options...
bjt22 Posted August 1, 2008 Report Share Posted August 1, 2008 My problem has been that my heart rate does not increase to my "target range" unless I am doing something ultra radical. The highest it will usual get is in the 130's. I did a "metabolic stress test" with my EP doc that diagnosed orthostatic intoloerance (he put me through a battery of autonomic tests) and my heart rate barely got to 135 by the end of the test. I asked the tech if that was normal (she kept asking me through the test if I could keep going and I said I was fine) and she said that a man my age, 47 at the time and 300 lbs, would not normally complete the test and if they did, their heart rate would be much greater. She was looking for the heart rate to be in the 180 or more range. I asked her when it was over, "I thought you said this was supposed to be hard?"My problem is I don't sweat much at all when I excercise (or any other time for that matter), so after about 20 minutes or so on a treadmill walking at the highest level of incline at 3.3 miles per hour, I am not winded, but my body starts to "heat up" on the inside and I know I better stop before I overheat. That is not a fun feeling.Just a quick question: My normal body temp is in the high 96 to low 97 range. When I am outside (Texas heat) for just a few minutes, I can take my temp and it will be over 100 degrees and it takes a while to drop back to normal. Is this rise in body temp normal? I wouldn't think it is, but just wondering what you have experienced.Are you on a beta blocker or any other similar drug? They can make it difficult to raise your heart rate. Also, many of us don't sweat or have patchy and irregular sweating at best, so this might not be the best indicator for you. Quote Link to comment Share on other sites More sharing options...
ljoeb Posted August 1, 2008 Report Share Posted August 1, 2008 Nope... not on a beta blocker. I do have a pacemaker because my heart rate was too low. It is set at 85 bpm at the low end and won't let my heart go over 150. However, I have had this issue with my heart not raising much during exercise long before I had a pacemaker... but just never paid it much mind.I joined a "spin" class (that's where you sit on a stationary bike and get yelled at for an hour by the instructor telling you to go fast... or stand up... or slow down.. etc) back in January of 2007. I was 300 lbs then too, and within 3 class sessions, I was able to go the whole hour without stopping. Everybody in the class would literally be pouring sweat within the first 15 minutes... I was lucky to have a few beads on my forehead and maybe a little wetness around my mid-section after the whole hour. During the class, the instructor would have us check our heart rate at intervals, and mine was rarely ever above 130... it was crazy. She just thought that even for my size that I was in pretty good shape.. I laughed. On days I didn't do the spin class, I could workout on the eliptical for 45 mins at a good pace without even breathing hard... weird. Quote Link to comment Share on other sites More sharing options...
Jordan5815 Posted August 5, 2008 Author Report Share Posted August 5, 2008 The thing with the heart stopped I went out and got a polar heart monitor watch with a strap i need to wear around my chest......I had a good workout today my heart rate for about 1 hour was at 145 during the excercise occasionally going to 180 when i was doing wind sprints. Something I don't regret doing after the fact was playing basketball with some participants of the workout program. My was down to 150 bpm before i started playing and quickly rose to the 190's when playing I did not want to ruin the game so kept playing it went to 194 the alarm kept going off on the watch but i said screw it. bottom line is I had a good time Very tired now but I think it's good for the long run. Yesterday I was so excited to see my standing hr was sitting at 85-95 woke up this morning and it was 110-135 standing it's the mornings for some reason which is weird because my bp usually stays the same throughout the day. right now standing it's chillin at 88-95 so it's still doing good but I feel like this is going to bring down my hr in the long run. I expect the definately make a big I did it post at the end of the 6 week bootcamp which is now 5 weeks since I completed 1!!!!! With the results it has gotten me. BTW? I read something that kind of freaked me out I read that pots can be an early onset of msa..... Is that true?BTW I gained 4 lb's since doing all of this I am now 129lb's for those who don't know when i was 14 i lost 40 lb's in 2 months for no apparent and no known cause. Now I'm 18 Quote Link to comment Share on other sites More sharing options...
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