Angelika_23 Posted May 1, 2008 Report Share Posted May 1, 2008 I will be going to see Dr. Grubb next week. Just wondering if anyone else will be there. Would love to meet others! Also, if anyone has any tips on what to expect, or ideas for what questions to ask, that would be great!Thanks,Angela Quote Link to comment Share on other sites More sharing options...
Ernie Posted May 1, 2008 Report Share Posted May 1, 2008 Hi,Have you confirmed your appointment because I have heard that he is cancelling all his May clinic? Quote Link to comment Share on other sites More sharing options...
Mary P Posted May 1, 2008 Report Share Posted May 1, 2008 I live in Ontario, Canada, and would like to know who is the famous Dr. Grubb that I keep hearing about? Is his only specialty in diagnosing and treating people with POTS? I could never go to the Mayo Clinic but would like to know just what he does. I've gathered from what I've read on this site that POTS sufferers very much appreciate the opportunity to get an appointment with him.Ernie, if the May clinic is indeed cancelled, a lot of people will surely be disappointed. I'm sure one has to wait many months to see Dr. Grubb. Quote Link to comment Share on other sites More sharing options...
Ernie Posted May 1, 2008 Report Share Posted May 1, 2008 Hi Mary,The waiting period to see Dr Grubb is about 8 months for a new patient. You can see his nurse practitioner if you don't want to wait that long.I am sure that being sick yourself, you can understand that he has some personal issues that he has to deal with that he are not under his control. Quote Link to comment Share on other sites More sharing options...
Angelika_23 Posted May 2, 2008 Author Report Share Posted May 2, 2008 Well,They called and left a message that they had to cancel my appointment, and I am to call back as soon as possible. Of course, I got the message this evening, after work, so I have to wait until tomorrow to call back. I am so upset. I have waited a year to see him. Oh, and he is booked out 13 months at this point.Angela Quote Link to comment Share on other sites More sharing options...
Sophia3 Posted May 2, 2008 Report Share Posted May 2, 2008 AngelikaI am so sorry for you and the others.Still it does not help those of you desperate to see Dr. Grubb for that important first time visit.But he needs prayers and understanding. Quote Link to comment Share on other sites More sharing options...
Mary P Posted May 2, 2008 Report Share Posted May 2, 2008 Hi Mary,The waiting period to see Dr Grubb is about 8 months for a new patient. You can see his nurse practitioner if you don't want to wait that long.I am sure that being sick yourself, you can understand that he has some personal issues that he has to deal with that he are not under his control.Hi Ernie,Thankyou for your quick and kind response. When I asked about Dr. Grubb, I had no idea that he was taking a leave from his practice. I joined the Dinet site in mid April, 2008, and now and then I would see his name in someone's post. I was curious as to what he did because a lot of people were anxious for his input and help.You see, since being diagnosed in Dec., 2007, my doctor still hasn't got a clue as to whom she can send me to for help. My only help has been following the advice given on various www sites. One of my sons and myself took it upon ourselves to phone various Hospitals/Clinics in Toronto to see where this would lead us. I had hoped that if anyone at these places has even heard of Disautonomia, Pots, Autonomic failure, etc., then I could give this info to my doctor. No such luck. So, 4 1/2 months later I haven't even had a referral let alone an appointment. People in Canada can wait from 6 - 12 months for an appointment with a specialist. IIf I ever do get a referral, by the time I do get to see a specialist, I'm guesstimating that a year will have gone by since that diagnosis last December.It was just a coincidence that I asked you what Dr. Grubb did in his practice just as he is taking time off. Yes, I understand that anyone at anytime may need time away from the stresses of whatever??? Teachers, priests, nurses, and yes, doctors. I recently met a doctor who had to retire at a young age and will never return to practice again.A receptionist at my doctor's office told me that she has over 2000 patients and that's why, when I need an appt, I have to wait at least 2 months. Last week I was told to go to a clinic or the hospital. The problem is, no one at the places knows anything about my condition either. It's quite scary.Just a week ago I heard on a CBC Radio programme that there are only 250 neurologists for the 11 million people in Ontario, Canada. I don't know what it's like in the other provinces but it's probably just as critical. With this kind of crisis, it's very little wonder that it takes a year to get an appointment, Even more critical is that some of the few neurologists we do have can't take the strain and demands of their work and are retiring or moving to the USA.I wish you a good weekend. I guess your weekend is well underway by now.Mary Quote Link to comment Share on other sites More sharing options...
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