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jdqm

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Everything posted by jdqm

  1. have any of you had trouble talking after you come to? i usually am unconsious for several seconds, and when i am consous again, i am told i cannot speak at all for several minutes up to 20 minutes. is this a normal lack of blood to the brain thing, or should i be really concerned. one er doc was worried i had a stroke. that was wierd. i dont think he was right.. his supervisor disagreed with him too, but they both wanted me to see a neurologist. like i need to see another doctor!! anyway... do any of you have this happen? Joy
  2. hi all of you! i am so glad i found you all!! thats why i feel bad for whining, at least i know he cared, it is just so stressful when he gets so overprotective he mekes me really feel like an invalid. i know he means well, but i am not glass. i have good and bad days, and on my better days, i like to do things. he doesnt seem to get it.
  3. Hi my name is Joy. i am 32 years old. i am married and have 4 children under 11 years old. i am supposed to go to my special ed childs school today to see what he has done this year. I have limited knowege of what goes on at class because he is essentially nonverbal. today I am having trouble with my husband who wants me to stay home. DH is convinced that is the only way we wont see the inside of an ER. he is holding over my head that he cant leave work so much. on this he is right. i have been passing out at least once a week this year. if only others wouldnt call the ambulance, but they always do. HELP. i am crying and we just fought again while i was typing. what do you all do when someone tells you you are too "sick" (direct quote) to do things with your children or families. he has said i can no longer attend family functions unless he is there. how do you balance POTS with family and daily life? i am whining i know but this disorder is really messing up my life right now, and i guess i am feeling sorry for myself.
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