heiseygirl

I also have had pain down my arm tingling and pain up my jaw. I had heart tests but nothing showed up except slight mitral valve. All my dads male relatives have died from sudden death including my cousin who died 5 years ago from this. With neurocardiogenic syncope I know I am at greater risk for this. My dad has a pacemaker and then he got a defibrilator he has congestive heart failure with only 20% output in his heart and now is having pulmonary problems. I have more symptoms of congestive heart failure then my dad. His chf DR. said he wouldn't touch my case with a ten foot pole. I get so discouraged especially when my insurance wont pay for me to see Dr. Khruna because he is not in my network. My cardiologist and neurologist both wrote in and they wont approve it. I saw him 2xs and loved him. He now wants to do tests but if anything would happen or show up during ,my insurance wont pay.

Ihave pots and nerocardiogenic syncope. I get terrible chest pain some time. It feels like a cement block is on it and like it is being twisted.Do others get this and what do you do. My cardiologist doesn't know why I have this.

Have any of you had alot of weight gain since getting sick? I started having symptoms about 51/2 years ago. has been about 2 1/2 years ago been diagnosed with POTS and neurocardgenic syncope. Have gained a total of 40 lbs. Had 4 months that were progresionally getting better to days that I felt better than I ever remember feeling. Have now back slid again. Not to where I started but not good. How to you handle going back when you have felt so good. It *****. How can I get rid of the swelling and weight gain?

Does anyone have problems with major constipation that nothing will help? Even what I got at the ER hasnt helped and they are not up to date on Pots, the nurse asked me what it is.