Heartbroken

Thanks bombsh3II for your input. Yes it is very frustrating when we feel (faint, woozy, weak, dizzy and lightheaded) not (vertigo) but our vitals betray us, especially at our doctor's. 

Dear Pistol,

Yes I am in Colorado and have Tricare. The last time I asked for a second opinion, the case manager in my doctor's office was so rude, she did not let me finish my concern. She shuffled me back to my Dr. 

With this insurance, even if the second opinion get approved, it has to be through my primary care Dr.

I am in a no win situation. Thank you a gain.

Thanks Pistol. Right now my Dr. had given me a glucose monitor for a month to see how low my blood sugar will drop, but the problem is I experience terrible symptoms of Hypoglycemia while my blood sugar would be in the 80s. The only sugar I take is carbohydrates, fruits  and from milk, I never eat sugar in it's simple form. I asked my Dr. to order glucose tolerance for me but he did not. I don't know how to convince him that I have a real and big problem. It is been 20 years that I suffer from chronic migraine and he had never referred me to a neurologist, he or his partners prescribe pain killers only. My choices of doctors are extremely limited due to the type of insurance I have and also my tight budget.   

I will try not to eat carbohydrates from now on especially in the morning.

Heartfelt thanks.

Yes Pistol you are right, they took both samples in a sitting position. I asked my cardiologist to order the test in different positions, but he ignored me and gave me silence treatment. I know for sure my catecholamines are much higher when I am standing but there is no way to convince my Dr. even with print outs (studies done by experts). 

My catecholamines levels in the past were so high that my Dr. thought I may have Pheo, but last week he told me now they are normal. Is that possible? the only new thing is now I am on thyroid med.

Appreciate your input. 

Thank you Pistol for saving me time and typing! I am %100 like you.

Thanks yogini. I have been like that for a very long time that I can't even remember. Ten years? Twenty? I really don't remember. The problem is no matter what I eat, same thing happens to me and always in the morning. I am not diabetic either. 

Appreciate your reply.

Thank you so much Delta for your valuable reply, time and energy, I really appreciate it.

That symptom you mentioned ( stomach is palpitating like my heart), I experience it many times especially at night, but I never dared to tell any doctor fearing to be labeled by them as it is all in my head.

I have tried tens of meds for POTS, they did not work or they made me worse. I take Atenolol only.

Thanks a gain. 

I had a flu shot about 16 years a go and had a POTS flare up immediately after it - I stayed in bed for 6 days. I haven't had one since. 

Some times after breakfast, I get lightheaded, very weak, craving sweets, weird feeling in my gut and hungry for air, but when I check my blood pressure, heart rate and glucose level, they will be close to normal. I asked my doctor he said it is anxiety! I have POTS, CFS, SVT, Hypothyroid (I take pills), MVP and Migraine.

Any input much appreciated.

Thank you Pistol and bombsh3ll for your replies😍

Hope everyone is less symptomatic and in no pain (physically and mentally).

After my EKG, Echocardiogram and 48 hours Holter monitor, it is written in the report (PSC, PVC, SVT and RBBB), but my cardiologist told me not to worry since they are not persistent.  My question is should I get a second opinion since I experience palpations many times a day?

Thanks in advance for your replies. 

On 4/19/2019 at 1:15 PM, potsiebarbie said:

Do they know why? Have you done a 24hr urine checking mag?

Unfortunately no. 

On 4/14/2019 at 4:30 PM, potsiebarbie said:

What's your diagnosis? Does your doc know why your mag is low? How are your other electrolytes?

I have many conditions including POTS. No my doc doesn't know why. My other electrolytes are normal. Sorry for the late reply, I was about to die, I was extremely sick.

Mine started when I was only 5 years old, but got worse after my C section.

I am exactly like you Pistol. You saved me some typing😂 

I take Magnesium citrate (Prescription) 400 mg twice a day, still my Magnesium is below normal. I get strong heart beats with the slightest loud noises.