Glynda J. Lucas

Thanks for the info. I just need to find out what type of dysautonomia I have and to get better treatment. The Florinef and Toprol are not working. I have taken them for one year. My cardiologist says to keep taking them and that she's glad I am doing better..it was as if she did not even hear me when I told her about my latest episode.

I have had blood in my urine for years. The doctors could never figure out the reason for it.

I am a new forum member also. I have been diagnosed with orthostatic hypotension but have had this since I was a teenager. I am now in my sixties and it is really bad. Last week, I was cooking in my kitchen. I started feeling a little "out of sorts" but was determined to finish cooking. I could feel my blood pressure dropping and my heart racing. I began to sweat profusely. Finally, I took my clothes off and wrapped myself in a towel so I could cool off. I was literally standing in puddles, my hair was dripping, and rivers of sweat were pouring off my face and down my legs. I must have had some cognitive problems because I did not recognize that I was in trouble. After I finished cooking, I drank some Gatorade and lay down to rest. Later, I went to my kitchen and saw that I had spilled grease in the floor and had been walking through it. Powdered sugar was everywhere. I remember dropping a cake in the floor, picking it up and putting the frosting on it. A couple of years ago, I was waiting in the summer heat for a bus. When I got on the bus, the cool air hit me and immediately, my bp dropped out of sight. When I woke up, I had projectile vomiting and explosive diahrrea. By that time the bus was on the freeway and couldn't stop. That was the most miserable thirty minutes of my life. These episodes leave me very vulnerable and subject me to danger. My doctor doesn't appear to understand what I have and the medication does not work. I have checked the dysautonomia web sites to find a doctor in the Houston area but do not find one. Can anyone recommend one? Or, would it be better to just go to a hospital in another state with an autonomic dysfunction center?

I am a new forum member also. I have been diagnosed with orthostatic hypotension but have had this since I was a teenager. I am now in my sixties and it is really bad. Last week, I was cooking in my kitchen. I started feeling a little "out of sorts" but was determined to finish cooking. I could feel my blood pressure dropping and my heart racing. I began to sweat profusely. Finally, I took my clothes off and wrapped myself in a towel so I could cool off. I was literally standing in puddles, my hair was dripping, and rivers of sweat were pouring off my face and down my legs. I must have had some cognitive problems because I did not recognize that I was in trouble. After I finished cooking, I drank some Gatorade and lay down to rest. Later, I went to my kitchen and saw that I had spilled grease in the floor and had been walking through it. Powdered sugar was everywhere. I remember dropping a cake in the floor, picking it up and putting the frosting on it. A couple of years ago, I was waiting in the summer heat for a bus. When I got on the bus, the cool air hit me and immediately, my bp dropped out of sight. When I woke up, I had projectile vomiting and explosive diahrrea. By that time the bus was on the freeway and couldn't stop. That was the most miserable thirty minutes of my life. These episodes leave me very vulnerable and subject me to danger. My doctor doesn't appear to understand what I have and the medication does not work. I have checked the dysautonomia web sites to find a doctor in the Houston area but do not find one. Can anyone recommend one? Or, would it be better to just go to a hospital in another state with an autonomic dysfunction center?