bttrflyamby1981

your not alone! I have a very hard time with the heat....and I live in Arizona! lol

I find the Florinef helps cause it helps me hold fluid so I don't get as dehydrated. Taking showers/baths help too. It cools me down.

Hi Tessa,

I'm glad you had some help!! Let us know if your friends is able to get it fot you.

sorry I'm a bit late...but I'm glad you felt up to posting. Hope you get feeling better. (((HUGS)))

I know of someone with this..I'll have to ask her about it.

I have to say it doesn't surprise me...I've heard this happening before. Great idea working for them!!!! hahaha whip them in shape!

If you have been on it for that long then it's hard to tell? Interested what the doc has to say. Keep us posted.

I couldn't take it.....made me feel awful.

Hi there,

I too had problems with weight gain.....with meds and not really being able to be active it's easy to put on the pounds!

I'm on the South Beach diet (approved by my docs) I have to tweak it a bit because it doesn't like you to have lots of sodium, but we need it.

I have lost 17 pounds now and 16 more to go to be at my ideal weight. I love this diet and it's been easy to follow. If anyone want's info on it just pm me and I'll be more then happy to send you what I have.

You see results right away!!!

Thanks for letting us know how it went...did you think EDS at all? Or was this a surpise?

I understand too....I even took a pregnancy test and I have my tubes tied! LOL

thanks for sharing..lol

It helps to know I'm not alone, it's just so frustrating!!! I feel pretty good sitting with the new meds, but holly cow, forget cleaning. I thought I would be ok..haha was I wrong.

I'm feeling a little better now that I ate lunch....

Ok, I cleaned my floors, took about 10 min tops and now I have a pretty good size headache. Took my vitals too...wow.

after sweeping my b/p was 87/67 bpm 108

after mopping my b/p was 85/67 bpm 137

Is this the way it's gonna be always? I mean is there any drug out there that will get this under control enough that I can actually do basic household chores without feeling like death!?

I took my b/p now that I have been sitting about 30 min.....

137/76 bpm 92 sitting

this is a bit high from my normal.....uhg

Sorry just feeling frustrated...I have to go lay down, hope I can get this headache under control before it turns into a MIGRAINE.

I think you should do the research if your able. Keep an open mind and don't get your hopes up, but I really hope you get all the answers you are looking for. (((HUGS)))

I struggle over the wheel chair thing....at times I really need to use one, but I haven't been able to bring myself to do so. I just keep pushing myself. I guess one of these times I will learn, but I'm afraid. I don't faint so I don't think I really NEED a wheel chair or even the use of a ride on one at the store. I know it would make things easier, but I just haven't come to terms with everything when it comes to "help", from people or the use of a chair.

masumeh...I can see your point,

However, I think it's unfair for people to judge us. We shouldn't have to watch what we say, although I find myself doing just that many times. It takes a lot of energy trying to act like everything is ok. We shouldn't have to pretend....it makes me angry that people are too selfish to have compassion. But that's ok too....it's their life and I can't FEEL for them. It just hurts when someone says things that maybe they shouldn't. We can't help how we feel.

I too try to save the "sick" talk for the forums or to people who are like me, but sometimes it can't be helped. My own husband tends to be pretty cold sometimes.....how fair is that? I resent that fact I have to push myself, and "pretend" to him that I'm better then I am. I'm glad you have GOD to turn to....that makes a great deal of difference.

I have been told I was obsessed with my illness, and if you recall I JUST got a diagnoses. Of course I was upset, frustrated, confused and so on trying to find the answers. I understand how upset you are with your co-worker for saying this. We are the only ones who understand how consuming this illness can be, no matter how hard we try to ignore it. We have faced the fact that we are not NORMAL and have to adjust to our symptoms everyday, every hour, ect.......

I can see how others feel that I'm obsessed, I try not to let it bother me. I have no control of what others think, and you know what? It's ok.....if they care about you then they would do the research and know how hard it is for you to live and work and should if anything, admire your strength. You are a smart, hard working person who is trying to do everything in your power to go even higher. Don't let someone who doesn't understand get to you. (((HUGS)))

yep, pretty common for me too. That time of the month can trigger the worst that's for sure.

Ihope you feel better....I get this off and on, sometimes I have no idea what brings it on.

I usually get chills when I'm doing too much.....but I don't know if it's only when I lay down?

yes me too.....I avoid them if I can.

My pharm didn't say anything to me (and they are always good about this type of thing) and it didn't say anything in the leaflet. I didn't know until you and someone else mention it. Maybe I will talk to the pharm....I have to go pic up my other perscrip anyway.

Thanks

I called the Dr office today to make my follow up appointment, I mentoned my concern about being checked out because of the type of med....she said if the Dr didn't say anything to me then he doesn't want to see me before then. Not sure what I should do? He's the Dr who prescribed the med.

Just wanted to let you know......

Yes, thanks Tessa I feel better.....I really like not taking Toprol, it just really did a number on me!

((HUGS))

It's not fun I know.....

It's a anti-arrithmia dizz....I know it's not a BB but don't know about the channel blocker?

Pat yes I'm on CR, did they want you to do a EKG on the med? I'm keeping an eye on my vitals at home, but wasn't asked to? Is that what you mean?

That's neat!