Billizzie

[Thank you, I thought I was going crazy. It wasn't making any sense to me. All I could think of was I was having a major flare, as other symptoms were happening as well. It gets so frustrating..to say the least! Liz

Hi, I'm a lurker who almost never posts, but I'm kind of in a pickle, and need some input. Do any of you ever have a problem with your dysautonomia causing your sugar levels to do the opposite of what it's suppose to do when taking the meds for diabetes? I know this is an incredibly odd question, but my husband and I even did an experience with this. My glucose level in the morning was 122, once I took my glipizide which I have to do every morning, my blood sugar went up to 200. I hadn't eaten breakfast yet, so I ate my breakfast, of course it went up to 255, and not going down. So I thought, I should take another glipizide to help bring it down. It went up to 355. Didn't know what was going on. Decided not to eat anything, but drink lots of water. After a few hours, it went down to 177. By this time, it was time for my late afternoon glipizide, so I took it, nothing to eat, and with in about a half hour, it went up to 307. The only thing I can think is that my dysautonomia was doing something odd to my endrocrin system. Since that day, we've check it religiously and with out a doubt, it kept going up, after taking the glipizide. I've been on it for about 3 years now, and have never had this happen. Have any of you, and what did you do. thank you so much for any info you can provide. This is so odd, and I really need it to behave itself!

HI, thank you all so much, no, I've never heard of cyclic vomiting, and I will do a search on it. I had wondered if it had anything to do with Dysautonomia. No, it is MG isn't due to the any mg drugs. But when this happens, it doesn flare my mg, and makes me very weak. To the point the I can't move or anything. Ofcourse I also have Cataplexy with the Narcolepsy, so I was wondering if it was that as well. I don't know, but I need it to stop. again thank you Lizzie

HI, I've been a lurker for a long time, and haven't posted. I was diagnosed with Dysautonomia about 12,13 years ago. In the past couple years, I seem to have a problem when I am sick. If I start vomiting, it's like my system goes crazy, and will not stop. I constantly have to get a script to help stop it, or I end up in the emergency room, in really bad shape. Do any of you have this problem? I also have Myasthenia Gravis, and Narcolepsy I'm so sorry, I know this is really a gross discusting question, but I'm desparate to make this stop. For the past few days, I haven't been feeling well, and truthfully, I have almost developed a phobia about throwing up, due to fact it means going to the hospital to make it stop. Thank you Lizzie