Hi Guys, Thanks to all of you for your kind welcomes. I am sorry to hear so many of you are suffering with similar problems as me, but it is always nice to know there are others who know what you are going through. A lot of my health conditions are "invisible" - other than when I am having a dizzy attack or people see me trying to catch my breath after walking just a few paces, and hobbling around on my crutches. Persephone, I do find my symptoms get worse if I stretch my arms above my head, and funnily enough when I yawn and stretch first thing in the morning, that actually makes me feel a bit lightheaded and my right hand starts shaking involuntarily - weird huh? I know I said I won't go into all my health problems in one go, but I also have another rare condition - Duplicated Kidney Systems (4 kidneys and ureters) and this adds to my Bladder problems which may or may not be connected to my EDS or Autonomic problems . A quick question, can some please tell me how you add a signiture to the bottom of your posts? I have not worked that out yet, and thought it would be useful to be able to list my major health problems in one go. Also, does anyone know whether Professor Mathias is ok about receiving questions by e-mail? After my tests I was told I may not get the chance to see him and my results would be sent straight to Professor Grahame. I feel there are a number of my symptoms that I would like to have the chance to discuss with him. I also have a lot of problems with my Neck and a number of Doctors have suggested I may have either High Spine Instability of Vetebrobasilar Insufficiency (where the blood is not getting to the brain properly). I have had a Brain MRI and Neck MRA but my local Neuro never got around to discussing the results with me . I found out from my Opthalomologist that he plans to see the results of the Autonomic tests before seeing me again. Another problem is as I am under so many consultants my fhospital file often goes missing as it is being hogged by the various Specialists and being used to train Med Students about my EDS problems - this has led to me not getting the follow ups I should be getting in the past and results of tests going astray . I just feel that despite all the different consultants I see, no-one is actually looking at my condition as a whole and would value the opportunity to discuss some of these things with Prof Mathias. I took the "Bull by the Horns" at the weekend and sent an e-mail via his secretary, but wondered if any one had any direct experience of dealing with him and would be able to give me an idea of whether he would talk to me or not. I just hate to think that I am going to crom across as an "anxious" patient, as I had a nasty experience with a Locum GP once (before my formal EDS diagnosis) who suggested I was "somatising" and that there was nothing physically wrong with me and it was "all in my head" . Sorry to have rambled on a bit. Take care all Sue.