Report Do You Tell Anyone About Your Dysatonomia in Dysautonomia Discussion Posted December 10, 2009 I am definitely a hider. I don't tell anyone, and the few people who do know about it, I do anything possible to change the subject when it comes up. I think it's because I am aware that most people around me think illnesses like POTS and CFS and the like are bogus. I did too, honestly, before I myself got sick. The other day I was at a volunteer thing I do, and there is a girl there who has been sick for awhile. No one really knows what is going on with her, and one of the DOCTORS I was volunteering with said, "It must be Chronic fatigue syndrome or one of those things. You know, the illnesses that give you an excuse for everything." I found that I was so personally offended, but realized she didn't know any better because I look and can seem very healthy and normal. But I know that is the prevailing attitude most people have, especially where I live. I think that telling people about my illness makes me weak and I end up feeling very, very ashamed. This is not healthy for me because then I am stuck lying and trying to cover up, so someday I would love to live in a nice, small town where people get to know and understand others in their community. Perhaps, as a city girl who knows no better, this is just an unrealistic dream!