Jordan5815

All I know is i took it at 10:00am first time and got passed out until 3pm which is weird...... I'm usually a night owl so it could have been that but have not noticed any other symptoms I will see what continues to happen

I honestly have no idea, I'm in houston right now it's usually pretty humid.....

Not a problem I was thinking it was diaphragm from the strong aortic pulse but that could be a number of things i responded to the breathing issue on other post.

Yeah he prescribed it because he said I have "panic" he said it's better for treating "panic" then benzo's like valium. I'm still gonna take valium tho, I don't have breathing problems, in fact my lung capacity is larger then the average person my lungs are also "longer". Even tho I smoke........ which I'm quitting set my date the day of my appointment with the neurologist October 22nd. ohh, and i don't feel light headed when is stand even if i get up really fast. but when i was on the TTT I got really light headed. And yes when i used to stand my blood pressure used to rise dramatically, same with pulse. After I've been running it has been dropping when i stand and my hr is not as bad as it used to be. Yes, I've had a ttt and it showed that my pulse and blood pressure went up have not had one since i started valium and metoprolol. I don't think I can take florinef because something I have noticed which I did not have before is when I'm sitting sometimes I get hypertension and mostly prehypertension now. Well I guess I'm gonna start, I've been eating a lot since i started valium it makes me hungry also gives me looooots of energy. before that i did not do anything, but sit or lay down all day. I'm gonna give it a shot and see what happens. it takes 2 weeks to get into full effect so let's see what happens.

Yes, I don't have syncope at all tho..... even presyncope episodes. For all I know my serotonin could be on the high normal since I am not depressed in which taking a ssri could give me serotonin syndrome basically a serotonin overdose. I think blood work should have been taken before an ssri was given.

What's funny is when i walked in he asked me if i was depressed I said no. He is like were you ever depressed I was like no, because I simply don't get depressed but explained those chemically induced panic attacks that happen even tho I'm calm as they are happening so I don't really "Panic" he prescribed me Lexapro a ssri don't know why but whatever....... I told him I'm currently taking valium and have not had a panic attack since but let's go ahead and hook me up to an antidepressant. Anyone know why he would prescribe an antidepressant to someone who is not depressed? Who knows maybe it will help he doesn't know jack about dysautonomia tried to explain it to him he just kept talking about adult and child brains and how panic disorders occur when they are changing sometimes temporary sometimes longterm. Any comments I'm actually finding humor in this not pissed at all

had chest xrays tons of those, echo, stress test, ekg's, 24 hr holter monitors, some event monitor that stayed on for 1 month and if my heart went over 150 it would start recording 1 minute prior and the minute it is going on, i could also press the button which i have done and it has recorded these things but nothing abnormal showed up just sinus tach.

does anyone else have any ideas Docs don't even know what it is...... maybe if i get ideas i can have them checked out. they happen alot during my chemically induced panic attacks. but mostly just happen out of the blue.

it's already been told to me it's not a arrhythmia it's my supposes "compensatory" system. But it literally makes me exhale when this happens i don't mean all my breath disappears it is like literally getting hit in the chest the wind gets knocked out of you. it happens and all of the air goes bye bye because i exhale it all. I can't even control it.

Ok, It may or may not have been caught on ekg's i believe i got one atleast but shows no abnormalities. I can be sitting, standing, walking, anything and i feel like someone just punches me in my chest and the wind get's knocked out of me literally. It also feels like a funky heart beat or maybe a skipped beat but I always get the wind knocked out of me, not shortness of breath I mean no breath. Any explanations? anyone else have the same problem? A person who reads ekg's told me it could be my compensatory system but i kind of doubt that. I've searched google for it and have not found a thing about that. notice these things do not last it happens and it's over. So any guesses, or people with some great knowledge can answer this. Because I don't know what the **** it is, could it be something with lungs, heart, etc. I'm confuzzled.

I'm sorry guys I think I am being misunderstood, when i stood up my blood pressure used to go to 240 over 140 now when i stand up it's going to 90 over 40 i get 0 symptoms from the blood pressure change but tachycardia i still have so i still feel weak. that is what is bugging me about it, it used to go up now it's dropping..... any explanations to that screw the msa and the other thing that was mentioned i apologize for bringing that up. but any explanations to what is going on, I'm going to finally see the neurologist on october 22nd at 2:30 at Tx childrens with a dysautonomia specialist. even started a countdown which im waiting for it to hit 0 http://www.timeanddate.com/counters/custom...sec=&p0=104

My heart rate still goes up but instead of my blood pressure going up it is dropping when i stand. I have not changed any medication just been running and trying to excercise alot. Any ideas because i am now dumbfounded......... I'm wondering what is going on......... seriously any explanations? and just out of curiosity.... What are the chances of my entire condition being a more generalized form of dysautonomia? I'm 18 and a male. I was looking at msa and some other forms and they all seem to appear in people over 50.

Geez, it's like I'm doing better then I'm doing worse with all the running I've been doing and working out i had my standing pulse to 80 bpm and my blood pressure was not through the roof like it normally does when i stand it's starting to go back again....... bandaid broke........ I'm seeing a neurologist Dr. Imad T. JarJour at Tx childrens hospital in houston texas apparently he handles ans issues and POTS as well.... I'm lucky I've had ans problem since i was 14 and never new it but was being treated for all kinds of stuff now that the stuff hit the fan i get to see this guy i'm pretty lucky. because texas childrens hospital does not see patients over 17 unless they were already being treated for the condition. Now that I'm starting to get more neurological problems I'm starting to worry about a more generalized form of dysautonomia. Which I don't want............ I want to make my body and heart get Super strong so I have no issues.....

I've been just now getting it and blah it *****..... how many people have that which have pots........ I've been trying to control it by slowing down my speech.

Ok cool, the hurricane passed a big tree fell on the house so that was fun lol...... I was up and outside during the hurricane it was pretty fun at 4am..... Appreciate the responses still have been continuing to run and workout every day. I'm getting alot stronger whats pretty weird is i notice when i just stand my heart rate is higher but when i walk it goes lower. so just standing in one place makes my hr go up higher. of course when i run my hr does what it is supposed to do go figure

I've been running about 1 mile every day can't tommorrow tho Hurricane Ike running up on me haha. My "panic episodes" which i found out were chemically induced waiting to see a neuro-endocrine. I have been covered up temporarily with valium. Also valium gave me more energy which I have been able to actually run a little bit. Since the running and the more excercising I've been doing some of the weird beats which feels like my heart does not beat then it just knocks the wind out of me have kind of gone away for the most part. Just get them every once in a while now instead of frequently. Used to get them with my "chemically induced panic episodes" whether it's a PAC or PVC it seems to be going away slowly but surely. Still trying to gain weight I'm 124lb's now and actually grew 1 inch so now im 6ft. btw, I don't know why running would get rid of the funky beats any answers been googling trying to figure out the deal. so what's up with you guys? - John

Where did you get the information on mito and ive been googling what is mito's real name I know mito is an acronym...... I'll take a looksy

Reason why I want to ask is we can also create a group on myspace to raise awareness.......

Here is mine www.myspace.com/johnjordan add me

Cool My Pots Symptoms are starting to come back on...... I enjoyed the break lol.

Has anyone ever had slight remission of symptoms my hr usually goes up to atleast 120 upon standing....... I have an excel document ive been taking for the past 2 weeks and for some reason since saturday my hr has only been going up 5-10 bpm upon standing......... I pretty much know it will go back to the normal 120 bpm instead of chillin at 85 90bpm so this is a pretty nice break. episodes still occur but pots symptoms are starting to go slightly into remission. It's pretty cool watching this excel document. When it flares back up I want to see what it does so I have that info for my doc....... Has this ever happened to any of you..... Simple Yes or no answer if you want to fill in the reason why it could be doing this that would be amazing Just more pieces to the puzzle. P.S. This has happened to me before, just wondering if any of you all have had this... and maybe a slight explanation to why.

I'm up at night time more then I am during the day, my schedule is so out of whack that is does not matter what time i wake up it's how long I've been up..... After being up for a while my symptoms go away...... The fluid I think holds more weight then the other but I just may be tired right now since I woke up at 9pm and am now righting this. lol. Definately want to know more theories as crazy as they sound does not matter to me......

By the pots symptoms I mean the faster heart rate upon standing....... I've been looking all around the web for that... If you can find anything towards the hyperadrenergic form of it that would be cool too. Not really interested in hearing about blood pressure normalizing towards the end of the night and that is why heart rate slows down. More of What chemicals cause the regulation or slight regulation. Because POTS symptoms are worse in the morning then at night time. Again when I'm talking about POTS symptoms I'm not talking about "Episodes" I'm talking about blood pressure rising/falling and heart rate going up upon standing.

How much does an average visit cost?

Right now I'm battling my insurance company to get into see Dr. Grubb. Now starting to go into appeal process lol....... I Just want honest answer here. TTT was positive for Pots no other tests have been done checking for pots but nothing I've read anywhere explains these episodes I get here: http://dinet.ipbhost.com/index.php?showtopic=10325 And the fact of my eyes have not constricted properly since i was 6 and when i was 14 I lost 40 lb's in 2 months. I'm tired and exhausted and I'm really skinny can't gain the weight. What's my possibility of having POTS? Hyperadregeneric what does that mean precisely? Does anyone here have episodes to the extent that you see in that post I linked to? Does pots come on gradually? Mine came one gradually I remember i just had 0 energy was not even sick. then it turned into what I have now. Does POTS affect weight, temperature regulation, pupil dialation etc.? It sounds like I have a autonomic nervous system disorder but what do you think? Should I not see anymore doctors and just wait to see Dr. Grubb.... No Other doctor has done jack except for my primary care physician who has been getting me referrals everywhere. I've done tons upon tons upon tons of research...... I'm stuck can't do anything and just hope that it is pots and that it may go away someday because the uknown is what I fear....... It could be something else mimicking...... I got checked for mvp too Don't have it one more thing I read somewhere pots can turn into msa is this true? I also read that 10% of all pots patients develop pure autonomic failure is this true? - John