Megan

Welcome Danielle! I'm 20 and in college in Ohio, though I'm from Indiana. Hope you find some support here.

Meg

You're definitely not crazy for being happy about that. Congrats on finally having a diagnosis!

Meg

I've had no similar experiences, but you're in my thoughts!

Meg

I'm praying for you and your father!

Meg

I definitely feel cheated sometimes...but then I think about how far I've come and what I've gotten through and I push through. Here's hoping something brings you smiles soon! You're not alone,

Meg

I hope your visit went well...

Meg

Are you sure it's the klonopin doing those things? Just something to think about.

Meg

You're in my thoughts and prayers! Your father too. -Meg

Just wanted you to know that you're in my thoughts, and that I hope you find things (and people!) to fill your time.

Meg

I can relate to people's frustrations about having used to been active. I was a cheerleader, colorguard captain, on the dance team....I can actually usually do a decent amount of exercise now, as long as I have someone with me. Another thing you might think about is a rocking chair, for days when you really want to do something but just can't seem to stand at all. I hope you find some things that work for you. I like swimming, but I'm not a very strong swimmer so it's hard for me to get a good workout that way! So like other people said, start slow, take someone with you. And only you know what your body can handle, so baby steps! Good luck!

Meg

Hi Grace! Unsure about the blood pressure...mine changed in my TTT. As for the blood volume, I never had that test; I don't believe it's necessary for a diagnosis, but maybe helpful towards one? I hope you figure things out. -Meg

My mom and I use the phrase "maybe it's just time" a lot. As in, it's been a while since I've had a relapse, and maybe it's just one of those things that has to happen every so often, to get it out of my system. Usually there's a trigger that only actually triggers something half of the time. But anyway...while that may not be a good medical explanation, it's one I do believe. Even if I do everything I'm supposed to do perfectly, I'm still going to have symptoms. You're in my thoughts.

Meg

I have had episodes similar to this that ended up just being POTS related and not seizures, but definitely push for the eeg! I hope you find some answers.

Meg

Hey Laura, I'm in college also...I have some classes on the top floor of a building and I refuse to take the elevator (even though I'm 'supposed to') because I don't want to look lazy, as I don't walk with a cane or anything. But by the time I reach the top of the stairs I look like I've just run a mile. It is frustrating...and as far as having to give up some old passions (cheerleading, colorguard, dance...) I try to focus on new passions (writing for the newspaper, being a poetry editor for the literary magazine). Anyway, know that you aren't alone in being frustrated, and send me a message sometime if you want to chat about the specific irritating things of POTS in college!

Meg

I have some advice as far as the depo. I've been on it a long time, as having monthly menstrual cycles wrecks havoc on my mind and body. However, right before and right after I get the shot I get REALLY emotional. Other than that, my mood is fairly normal. So I'd suggest writing your mood on the calandar so that you remember for the next time, should you continue to receive it. I find that depo helps me immensely, and I hope it works out for you. I'd suggest waiting a week or so and seeing if your mood calms down before you make any decisions. Good luck!

Meg

I understand the frustration of forcing yourself to stay in bed for a while so things don't get worse! I hate it; I always think that there must be SOMETHING I can do to stop an attack from happening.

Meg

While I don't have EDS, I wanted to let you know that you are in my thoughts, and also that I agree with Maxine, you should see a dr, besides just the er.

Meg

My mom always made tea with honey, soup, and made sure I pushed fluids like gatorade when I was sick. I hope that you start to feel better very soon and that you find someone to help you out!

Meg

Good luck! I hope you find answers!

As far as the stomach pain, that's one of my worst symptoms. Other than taking rolaids just in case, I've found that using a heating pad is really the only thing that makes a difference. I kind of just have to wait the pain out. (like so many other pots things...) I know that doesn't help much, but you aren't alone in that.

Meg

Congrats!!!

I have not been on this med, but I understand what you mean about trusting your instincts. Did you mention that to Bev? If you haven't, I think you should. She might have another alternative or a way to make you feel better about it.

Meg

I feel like I get uti's ALL THE TIME. A big reason is probably sex...but since so many people seem to have this problem, does anyone know if this is a common POTS symptom (the likelihood of getting a uti)? Just curious. I drink a ton of fluids and take cranberry tablets every day (since I'm so prone), but I still get them fairly often.

Meg

This happens to me, also.

Happy (very) Belated Birthday!