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Elly

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  1. Hello, happy to have stumbled onto this thread. Diagnosed POTS, EDS, MCAS, mixed connective tissue disorder and others. Born and raised Oklahoma, we have lived in SW Colorado for 22 years. We are currently at 7,000 feet. Change of seasons are very difficult for me. Fall is harder while Winter is absolutely intolerable. I am weaker, more forgetful and most painful during this period of year. We are considering a move to Florida, perhaps Tampa area. From what I have read, tjere is potentially better docs in Brandon and Wesley Chapel? We have visited there a few times and other that California it seems to have the most comfortable climate for my body. While I do tend to feel more faint in the heat, the brutal cold and elevation of Colorado is a much worse feeling for me. I stay in a flare through the duration of winter. For the life of me I cannot find a good doctor here. 22 years in and it has taken me 21 years of begging for help to get diagnosed. And for that had to travel to another state and pay cash. At this point time is running out, I simply cannot sirvive another winter here. I am currently feeling the worst I have ever felt. I am doing my best to sell all of our belongings to save up to move. Your incites are most appreciated. Is anyone living somewhere that have great medical care? That is number one on my list. Sea level being next on my list. No Texas, Oklahoma any other place that gets to freezing weather. TIA
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