My grandaughter now age 20 has Ehlers Danlos Hypermobility. Since she was a very young child, she sweats all night. It seems like she has POTS but doesn't complain of tachycardia. Her doctor tried Midodrine that was absolutely amazing for one day only and it didn't work at all after that one day. No one can explain that?
she sits with her legs pulled up to her chest. She has done this her whole life.
she is very fatigued and feels weak much of the time. She cannot work and has no social life.
she has a primary care doc that is baffled. What kind of doctor should we take her to?
