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Thank you, Sushi. On the contrary, this is helpful to know and I'm glad you were able to find relief! So far, mine is subtle (10-15 beats lower at max effort), so cardiologists have explained it (and my baseline bradycardia) as due to athletic conditioning. But data from my sports heart rate monitor tell a different story. Did you by any chance have a similar issue with breathing rate?

Long-time runner here. One of the symptoms that clued me in to an autonomic issue was my heart rate progressively stopped keeping pace with my workload, over the course of a year. The experience was different than simply being tired from a maximum effort (burning lungs and burning/aching limbs). It was this feeling like my heartbeat and breathing were not keeping up with my legs. My HR monitor backed up this story, showing a 10-15 bpm decline during max efforts. I've had cardio workups, nothing structurally wrong with my heart, though I do have prolonged QT. Googling around I found the term "chronotropic incompetence" - here's an overview: https://www.ahajournals.org/doi/full/10.1161/CIRCULATIONAHA.110.940577 Athletes, have you experienced this? Were you able to do anything about it? Thanks 🙏

I'm curious to know how many people in this community have had an optic neuritis? I had one 5 years ago. No MS or other cause was found, so I wonder if might be related to dysautonomia. Would be great to hear others' experience with this.

Hi all! I started using a 24-hour BP monitor just this week. It takes a reading every 30min. I'm seeing 2-3 periods of very low BPs each night, with diastolic in the 40s or high 30s (normally 75 in daytime). Systolic is less abnormal during those dips ranging from 80s-100s (normally 120 in daytime). The dips seep to last 30-90min each. Outside the dips, sleeping BP is about 20% lower than daytime, as you'd expect. During the dips, I often suddenly wake (from a deep sleep, for no apparent reason) with numb hands and swollen fingers. I wonder...do any of you get have dips in BP while sleeping? Or wake up with numb/swollen hands? Thanks! D

There's a phenomenon known "concealed" long QT, which is provoked by exercise. So you'll see it on stress tests and VO2 max tests, but not on a resting ECG. At 490ms it seems to me they'd want to measure your QTc on a subsequent stress test in order to rule out concealed long QT. Repeating static/supine ECGs won't show it.