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Are there prepared pamphlets, that could be purchased, to give to physicians who say they have never heard of Dysautonomia? Those words came from my husband’s primary care physician as my husband was having his annual check up and turned to ask me how I was. I have looked through Dysautonomia International site, but I feel medical articles and videos, however excellent, will not be used. I was truly taken back, especial with the news sites giving so much coverage to some of the additional conditions that long haul COVID patients are experiencing. Thank you for any suggestions.

In our Dysautonomia community how has this season ‘s flu shot gone for people? Flare ups or all OK? Next vaccine I must decide on and a little less courageous after my particular reaction to 3rd COVID booster. Thank you.

Thank you, Dysautonomia Matt. Your kind response is appreciated.

My sincere thanks to all who participate in Dinet, sharing their experiences, researched information, and excellent hyperlinks. It has been a life line for me. I would have been much better prepared if I had checked this source before my 3rd booster. Sunday, at 3 pm, Sept 29 I had my Omicron booster shot. Monday morning did not feel great but no worse than first COVID‐19 shots and boosters. At 1 pm. I was unable to walk straight, lost the ability to stand, and began vomiting. Was admitted to our closest hospital. The first assessment was a stroke. The hospital was very thorough with testing and evaluation. They concluded that the most serious was the finding that my K and Mg electrolytes were extremely extremely low which was corrected with an IV solutions over two days.. I was released Tuesday afternoon, but with a distressing flare up of my orthostatic intolerance. I had been proud of my management of my Dysautonomia with lots of fluid, electrolyte products, small meals, regular exercise, and careful good food consumption and lots of patience with a loss of an active competitive life style. But this really set me back to my first days of being diagnosed. I believe that vaccines are important and would probably make the same choice to have the booster. I do wish I had checked this site and read the suggested hyperlink and I may have been more prepared.