I wanted to share the following site: https://www.guidetopots.com/
My daughter developed POTS at age 11, close to 2 decades ago now. It changed her life track completely. She recently created https://www.guidetopots.com/ to provide some guidance based on her experience (navigate schools/college/work/etc.). I think this is an incredible site she created. It should provide info for others that we struggled to come by. I hope it does.