JennieHJO

Very interesting and quite possibly very helpful. There are so few people, including my current doctor, that can talk to me about all these possibilities. Who is your doctor, are you satisfied, and where do you live? I’m in Birmingham, AL.

I have Hyperadrenergic Dysautonomia, which means that my body is flooded with adrenaline throughout the day and night, always in”fight or flight “ mode. I take Trazadone and Klonopine (1.0 mg) at night to help me sleep. It works OK. BUT, when we went out of town last weekend, about 3hrs from home, my meds didn’t make it into my bag. I didn’t realize what a big deal that was. OMG. Within 24 hours of my last dose, I started into withdrawal, as if I were a heroin addict. Worst day of my life. We got home, I took pills, and was better w/i about 2 hours. But 5 days later, I’m still feeling the effects. My question: Has someone successfully weaned him/herself from Klonopin? If so, how?? Thanks so much.

I was diagnosed with dysautonomia about 25 years ago, and am seeking a newer, different treatment than the one that was prescribed 25 yrs ago. I have a rare type: Hyperadrenergic Dyautonomia. This means that my body releases too much adrenaline all during the day and night. Supposedly, only 10% of us have this kind, and it’s the hardest kind to treat. If anyone has any information that might help me, I’d really appreciate your sharing.