So about 10 years ago I had very bad vertigo, brain fog, etc and was developing POTS symptoms. It lasted for about 2 years. I remember being sick all the time and having to quit my job. I remember craving pickles and sardines and that was like ALL I ate. Which at the time seemed weird, because I had no inkling of what was going on with my body. For years I have struggled with vertigo on and off. But really nothing severe anymore and I've been pretty good for years. I still have the fatigue, nerve pain, gastrointestinal issues, breathing problems. In the past when I have needed pain killers (when I got my gallbladder taken out) I had some adverse reactions to opiates. It seems like I have (or have had in the past) every symptom of POTS. I asked my doctor about 5 years ago to test me for POTS because I had heard of it and a lot of it seemed to resonate with me at the time. He told me it wasn't necessary. So I believed him. Well now it feels like my body is attacking me again. Only vertigo attacks that last a few seconds (THANK GOD) but I'm having some pretty rough breathing and gastrointestinal issues and my heart is beating so fast all the time. So instead of going to my doctor again, I am going to make an appointment at the Cleveland Clinic.
Does anyone have an experience getting diagnosed at the Cleveland Clinic? Any doctor recommendations?
Even though I don't have serious vertigo now, would the tilt test still work for me?
I have been struggling with this invisible illness for years, I've heard people talking saying that they think I'm faking it. That I'm overreacting. I'm tired of it and I just want to put a name to it. I'm so nervous that I won't ever be diagnosed with anything and that maybe I don't even have POTS at all.