OSucrose

@Pistol I have not been diagnosed with MCAS. I felt fine yesterday but my rash is back today and so is my fever. Luckily my skin sensitivity hasn't presented itself yet. My rash sort of looks like my hair follicles are like inflamed or something? I don't know how to describe it. It's definitely a flat rash, not raised.

I don't always know what POTS can do. So I wanted to see if anyone else has had a similar experience. The other day I noticed a rash on my arms, but didn't think much of it. So later that night I noticed it spreading down my arms, and my legs. It itched, and burned. I was hot to the touch. I had a fever and my legs felt similar to when my nerve damage on my hands act up. (Whenever I touch anything cold, it feels like there is sandpaper rubbing up against my hands) It was hard to walk bc my skin burned so much. It lasted about a day and a half, but I applied a steroid cream to it partway through the day. (Also a took benedryl a few times and it did nothing) The rash has mostly resolved itself and I woke up this morning feeling mostly fine. Has anyone else experienced something like this or is it one of my other conditions, or perhaps an allergic reaction?

So about 10 years ago I had very bad vertigo, brain fog, etc and was developing POTS symptoms. It lasted for about 2 years. I remember being sick all the time and having to quit my job. I remember craving pickles and sardines and that was like ALL I ate. Which at the time seemed weird, because I had no inkling of what was going on with my body. For years I have struggled with vertigo on and off. But really nothing severe anymore and I've been pretty good for years. I still have the fatigue, nerve pain, gastrointestinal issues, breathing problems. In the past when I have needed pain killers (when I got my gallbladder taken out) I had some adverse reactions to opiates. It seems like I have (or have had in the past) every symptom of POTS. I asked my doctor about 5 years ago to test me for POTS because I had heard of it and a lot of it seemed to resonate with me at the time. He told me it wasn't necessary. So I believed him. Well now it feels like my body is attacking me again. Only vertigo attacks that last a few seconds (THANK GOD) but I'm having some pretty rough breathing and gastrointestinal issues and my heart is beating so fast all the time. So instead of going to my doctor again, I am going to make an appointment at the Cleveland Clinic. Does anyone have an experience getting diagnosed at the Cleveland Clinic? Any doctor recommendations? Even though I don't have serious vertigo now, would the tilt test still work for me? I have been struggling with this invisible illness for years, I've heard people talking saying that they think I'm faking it. That I'm overreacting. I'm tired of it and I just want to put a name to it. I'm so nervous that I won't ever be diagnosed with anything and that maybe I don't even have POTS at all.