I have interstitial cystitis which has ties to dysautonomia which I have not officially been diagnosed with yet. That said, myself and both my kids have been diagnosed with hEDS since 2019. I have done so much research since then on many of our issues. I also have pelvic floor dysfunction which causes me to release a little more urine after my stream stops and I try to stand up. I have long said that sometimes I can not feel myself urinate. Both of my children also struggle with bladder issues ie; spasms, pain, frequency, urgency, pudendal nerve issues. I have a procedure typically 3 to 4 times a year to minimize some of these issues.
