Hello, I’m new. I’m 6 months post COVID and a long hauler (caught at work in NHS with no PPE). I developed what was possibly PoTs at 20 followed a tonsillectomy (30 yrs ago). It was a rocky road but in the last 5 years I had a reasonably normal life. Unfortunately post COVID I’m back there. Fainting, tachycardia/bradycardia, high/low blood pressure/ chronic fatigue/muscle pain/ nausea. One thing that has been consistent throughout when I’m feeling dreadful is that my pupils dilate and constrict without any light stimulus. Like they’re on their own little dance floor. Any dr I’ve ever mentioned it to has dismissed me and my only diagnosis in 30 years has been anxiety (I’m not!) and attention seeking (I’m not).
thanks for reading, any advice very welcome!!!