Yeah i manage symptoms with lots of rest, fluids, salt, avoiding stress, managing my body temp, (avoiding getting cold or hot) not being on my feet too much. and sometimes compression, although I don't like them much and they only help if I can keep from getting too warm in them. I feel like compression just barely takes the edge off for me so i don't bother unless I know I'm going to need to be on my feet longer than usual.
I've tried a number of Beta Blockers, and meds to constrict veins. I've also tried Clonidine. I don't remember if I've tired Midodrine specifically. meds that constrict blood vessels are tricky for me because I have severe Raynauds. Some meds I've tried make that a lot worse. SSRI's do help me with sleep. I do take one of those. I don't think i've ever tried Trazodone. I could look into that. I use Magnesium, Taurine and a tiny bit of Progesterone cream (at certain times of the month) to help with sleep issues. I have tried one stimulant med and felt pretty terrible on it, very wired/ tired. I don't think I've tried Ritalin or Modafinil though. I've tried Fludrocortisone. I feel like i tried med after med after med in my teens and twenties. I took a break from it all in my thirties other that an SSRI and my own home remedies. I guess I feel like, is there more I can try that I have not tried? Do I want to risk feeling worse while trying new meds? I'm guessing I would need to come to my doctor with my own research and ideas of things to try since I don't live near a specialist.
My blood pressure does go up when I'm standing and then eventually drops. I'm pretty sure I have hyper POTS. Dr. Grubb thought my POTS was likely the type caused by too stretchy of connective tissue, but I'm not sure if that is correct or not.