Hi Everyone,
hope you are safe.
I was diagnosed and sent to the ER with high bp and high heart rate.
About a week after that is when my low bp became a problem. It lasted 2-3 months.
i was on Midodrine and high salt diet.
I am weaned down to 2.5 mg of Midodrine in am. I was up to 7.5 3 times a day.
I have gone back to work and my early shift combined with stress put me in to a high bp last week (140/100), While my HR was on the lower side(70’s with activity, it usually goes in to the 90’s with walking). I am a Respiratory Therapist at a Hospital in CT in the surge of Covid.
my pcp recommendation was to go off Midodrine and reduce stress, lol.
I don’t understand this disease. Do you often go high and low? If you are running higher should I cut out the high salt diet , compression hose and black licorice root? How often should I take my bp?
one interesting thing was that I took a Tylenol when my bp was high and it made me feel better so I may keep those handy.
Because I was diagnosed in this Covid pandemic I haven’t been able to get to a Dysautonomia specialist.
I also don’t understand if I am coming out of a flare up or going in to a new one and what my new baseline looks like?
Basically I can’t rely on my body it’s one day at a time but that makes life hard(especially mornings).
Any ideas I appreciate, and I know it’s not official medical advice.