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fotofem

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  1. I am definitely having those issues with Midodrine! I took it to mean that my BP was falling like a rock but suddenly I started to wonder if I have a huge tolerance problem. I've increased my use of Fludrocortisone, no satisfaction yet. It is disturbing that my cardiology docs say Shut up and take your medicine when I ask What's my diagnosis? What's wrong with the data I'm showing you? And disturbing to be told these are the only 2 meds available even if you get an answer as to the cause from a Dysautonomia specialist. "The treatment will still be the same." -->For those of you who have seen such a specialist, is this really the only treatment they advise? My next doc [at Stanford] has March 2020 as his first new patient appointment, and I don't know how I can make it to there. What else should I be doing? My low BP problem started abruptly suddenly when I had a (single lifetime) kidney infection. I went from chronic "low normal" to needing Midodrine 2.5 and testing with a cuff during the day. It has continued to head towards the 60's/xx and I might have had a long period of unconsciousness without Midodrine. But now I am frightened by Fludrocortisone, seems to be a wild card but I need something to put a barrier, like a basement below which my body won't go. I take Lyrica and Doxepin, and I'm going to try to cut back.
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